HAE 2018-01-28T00:03:30+00:00

HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where they live.

Suffering from HAE? You are not alone!

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Read the latest news from HAEi

18Apr, 2018

Swissmedic Validates Marketing Authorization Application for Lanadelumab

The Swiss Agency for Therapeutic Products (Swissmedic) has validated the [...]

15Apr, 2018

Join the community for HAEi youngsters

As you may recall the HAE Global Conference 2016 in [...]

14Apr, 2018

The HAEi Global Access Program helps changing lives of HAE patients

Since announcing the appointment of Inceptua Medicines Access as the [...]

>> See list of all news here

Check out HAEi events around the world

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Winding Trails Inc.
Farmington CT United States

Apr 28, 2018 at All Day

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– Language: Global

May 16, 2018 at 12:00 am

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May 16, 2018 - May 17, 2018 at All Day

>> See list of all events here

Read the newsletters sent from HAEi to our subscribers

29Mar, 2018

HAEi Magazine March 2018

22Dec, 2017
27Sep, 2017
30Jun, 2017

HAEi Magazine June 2017

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Find HAE “Points of Interest” relevant to you


Missed opportunities due to HAE

It’s important to get the right treatment to get the most out of life

Patients report that HAE has hindered their education and work opportunities.

Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.

Percentage of patients reporting severe impact from HAE on education and career:

Impacted career advancement 57 %
Unable to consider certain jobs 69 %
Impacted career choices 63 %
Did not go as far in school as desired 40 %

Download the full “State of Management of HAE in Europe” report and get all the usefull insights

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Read the stories of HAE patients from around the world

HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.

Reach out to HAEi

At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!

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Your personal story, an invitation to your community’s event, local or national news, feedback, questions …

All that and much more is always welcome in HAEi’s mailbox.

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