HAEi is the international umbrella organization for the world’s Hereditary Angioedema (HAE) patient groups.

HAEi is dedicated to raising awareness of C1-inhibitor deficiencies around the world. We strive to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies, which will enable lifelong health for all patients – no matter where they live.

Suffering from HAE? You are not alone!

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Meet your HAEi Regional Patient Advocate

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Read the latest news from HAEi

12Sep, 2016

HAEi Newsletter #4/2016 out now

We are excited to inform you that the fourth edition of the [...]

31Aug, 2016

FDA Accepts Application for Subcutaneous Prophylactic Therapy

The U.S. Food and Drug Administration (FDA) has accepted for [...]

11Aug, 2016

KalVista Initiates Phase 1 Clinical Trial for HAE Treatment

KalVista Pharmaceuticals announces the dosing of the first subject in [...]

>> See list of all news here

Check out HAEi events around the world

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– Language: English
Shangri-La Hotel
Kuala Lumpur Malaysia

Oct 17, 2016 - Oct 20, 2016 at All Day

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– Language: English
Sheraton Brussels Hotel
Saint-Josse-ten-Noode Belgium

Nov 15, 2016 - Nov 17, 2016 at All Day

>> See list of all events here

Read the newsletters sent from HAEi to our subscribers

12Sep, 2016
22Jun, 2016
29Apr, 2016
24Feb, 2016
>> See list of all newsletters here
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HAEi on social media

You can follow HAEi on a number of social media platforms where we will keep you updated on the latest news regarding HAE.

Find HAE “Points of Interest” relevant to you

 

Missed opportunities due to HAE

It’s important to get the right treatment to get the most out of life

Patients report that HAE has hindered their education and work opportunities.

Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.

Percentage of patients reporting severe impact from HAE on education and career:

Impacted career advancement 57 %
Unable to consider certain jobs 69 %
Impacted career choices 63 %
Did not go as far in school as desired 40 %

Download the full “State of Management of HAE in Europe” report and get all the usefull insights

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Read the stories of HAE patients from around the world

HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.

Reach out to HAEi

At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!

Say hello!

Your personal story, an invitation to your community’s event, local or national news, feedback, questions …

All that and much more is always welcome in HAEi’s mailbox.

So please, send us a message, if you have anything you want to share with us.

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