703, 2017

19th GENERAL ASSEMBLY AND ANNUAL MEETING OF AEDAF

March 7th, 2017|0 Comments

The 19th General Assembly and Annual Meeting of AEDAF will be held on Saturday, 1 April 2017 in Hospital Universitario La Paz in Madrid. This year we are pleased to have representatives of HAEi with us: Anthony Castaldo, President; Henrik Boysen, Executive Director; and Maria Ferron, Regional Patient Advocate for the Mediterranean countries. We will also be screening “Special Blood”, Natalie Metzger’s documentary about HAE.

 

Click here for PROGRAM (in Spanish)

703, 2017

PATIENT WORKSHOP IN EXTREMADURA

March 7th, 2017|0 Comments

On 19 January 2017, AEDAF held its 11th patient workshop in Cáceres (Extremadura) with an attendance of around 40 people (sponsored by Shire).

 

Click here for PRESS RELEASE (in Spanish)

603, 2017

HAEi/AEDAF Camino Walk 2017

March 6th, 2017|0 Comments

 

After the very successful HAEi/AEDAF Camino Walk on the legendary Camino de Santiago in northwestern Spain during the days leading up to the HAE Global Conference 2016 in Madrid, HAEi has decided to go ahead and organize a Camino Walk to commemorate the global awareness day for HAE, haeday :-), in 2017. CW17 is open for registration and there is still time to sign up:

 

https://haei.org/inscripcion-al-camino-de-santiago-2017/

https://haei.org/camino-walk-2017-sign-up/

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