About javier diezma aparicio

This author has not yet filled in any details.
So far has created 9 blog entries.

2017 HAEi YOUNGSTER’S SUMMER CAMP. AUG. 3-6, FRANKFURT (GERMANY)

By |March 7th, 2017|

Click here for more INFORMATION

19th GENERAL ASSEMBLY AND ANNUAL MEETING OF AEDAF

By |March 7th, 2017|

The 19th General Assembly and Annual Meeting of AEDAF will be held on Saturday, 1 April 2017 in Hospital Universitario La Paz in Madrid. This year we are pleased to have representatives of HAEi with us: Anthony Castaldo, President; Henrik Boysen, Executive Director; and Maria Ferron, Regional Patient Advocate for the Mediterranean countries. We will […]

AELMHU-FEDER: RECOMMENDATIONS FOR SEEKING SOLUTIONS IN THE AREA OF RARE DISEASES

By |March 7th, 2017|

Click here to see the DOCUMENT (in Spanish)

PATIENT WORKSHOP IN EXTREMADURA

By |March 7th, 2017|

On 19 January 2017, AEDAF held its 11th patient workshop in Cáceres (Extremadura) with an attendance of around 40 people (sponsored by Shire).

 

Click here for PRESS RELEASE (in Spanish)

HAEi/AEDAF Camino Walk 2017

By |March 6th, 2017|

 

After the very successful HAEi/AEDAF Camino Walk on the legendary Camino de Santiago in northwestern Spain during the days leading up to the HAE Global Conference 2016 in Madrid, HAEi has decided to go ahead and organize a Camino Walk to commemorate the global awareness day for HAE, haeday :-), in 2017. CW17 is open […]