The 2020 HAE Global Conference in Frankfurt, Germany is only about five months away, and at HAE International everyone is doing their part to get the largest HAE gathering ever ready. “At this point, all travel grants have been allocated to patients and caregivers from around the globe, and every day we are receiving new registrations for the conference. Momentarily we have [...]
From Regional Patient Advocate Javier Santana: Costa Rica has had its 1st Costa Rican Allergy Congress where Dr. Mario Martínez, who helps the group of HAE patients in the country, offered a comprehensive presentation on HAE to all attending physicians.
From Regional Patient Advocate Javier Santana: The HAE patient group in Panama is now officially and legally registered in the country. The group, together with Dr. Olga M. Barrera, has participated in several conferences in the interior of the country to educate professionals on HAE. Muhammad Rawat, the group leader, reports that the group of patients is quite active working along with [...]
From Regional Patient Advocate Fiona Wardman: I am in contact with physicians and patients in Bangladesh, as such, communication will continue to establish how to assist patients and educate physicians.
From Regional Patient Advocate Fiona Wardman: I am in contact with physicians and patients in Sri Lanka, as such, communication will continue to establish how to assist patients and educate physicians.
From Regional Patient Advocate Patricia Karani: I am currently working with new doctor contacts in Zambia to help in raising awareness in the country.
From Regional Patient Advocate Javier Santana: December 2019: A success during the last few months includes contacting Dr. Patricia Latour, an Allergist and Epidemiologist from the Dominican Republic. Dr. Latour is president of the Latin American Society of Allergy, Asthma and Immunology. According to information provided by Dr. Latour, the Dominican Republic has identified 22 patients in clinics around the country. Dr. Latour [...]
From Regional Patient Advocate Fiona Wardman: The first of its kind patient meeting was held in Seoul, South Korea on 9 November 2019 with presentations from Korean doctors and patients, and HAE International. Following the meeting a patient group was formed. The group already has a website up and running at https://haekorea.haei.org/.
From Regional Patient Advocate Michal Rutkowski: Georgia is a recent addition to the HAE International family, becoming a member in late October. The driving HAE force is Professor Maia Gotua from the Allergy & Immunology Center in Tbilisi, who looks after many patients with HAE. Maia Goyua puts lots of effort to finally having HAE therapies approved in the country, and she [...]
From Regional Patient Advocate Michal Rutkowski: HAE Belarus organized the annual summit on 26 October 2019 in the Belarusian Research Center for Pediatric Oncology, Hematology and Immunology in Borovlyany, Minsk region. The meeting gathered approximately 40 participants: patients, caregivers, physicians and pharmaceuticals’ representatives from Takeda Belarus. I had the pleasure of attending the meeting and to present the ‘Achievements and Perspectives of the HAE International [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
