We are excited to inform you that the fifth edition of the 2015 newsletter is out today. The newsletter comes in a completely new design and offers our readers either a "Magazine View" og a "Single Page View". Feel free to download it here.
Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAEi has developed two documents for patients and another document for physicians. You can download the documents below: Support Family Testing - Patient Pack I Support Family Testing - Patient Pack [...]
Unique patient organization-driven program is enabling people with HAE who cannot access effective treatments to receive medication for the first time Leiden, Netherlands and Burton-on-Trent, UK – 21 July 2015 – Pharming Group N.V. (“Pharming or the Company”), Euronext: PHARM) and Clinigen Group plc (‘Clinigen’ or the ‘Group’, AIM: CLIN) today announce that their global [...]
Landmark global program opens access to HAE medicine to rare disease sufferers for the first time Lausanne, Switzerland – 16 May 2015 – Thousands of patients suffering from a rare and potentially fatal genetic disease will have access to medicines for the first time, with the launch of the HAEi Global Access Program (HAEi [...]
Here you can download the 2011 HAEi Patient Advocacy Forum report "State of Management of HAE in Europe" English version - "State of Management of HAE in Europe" German version - "Stand der HAE-Behandlung in Europa" Spanish version - "El Estado del Manejo del AEH en Europa" Italian version - "Stato della gestione dell'HAE in Europa" Danish version - "Europas nuværende behandlingstilgang til [...]