Boysen

About Henrik Balle Boysen

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So far Henrik Balle Boysen has created 24 blog entries.

Support Family Testing

Hereditary Angioedema (HAE) is a hereditary disorder. It is therefore very important to have other family members tested. To help you in this process HAEi has developed two documents for patients and another document for physicians. You can download the documents below: Support Family Testing - Patient Pack I Support Family Testing - Patient Pack [...]

HAEi Global Access Program for RUCONEST® Now Live

Unique patient organization-driven program is enabling people with HAE who cannot access effective treatments to receive medication for the first time Leiden, Netherlands and Burton-on-Trent, UK – 21 July 2015 – Pharming Group N.V. (“Pharming or the Company”), Euronext: PHARM) and Clinigen Group plc (‘Clinigen’ or the ‘Group’, AIM: CLIN) today announce that their global [...]

Unique HAEi Global Access Program launched

Landmark global program opens access to HAE medicine to rare disease sufferers for the first time Lausanne, Switzerland – 16 May 2015 – Thousands of patients suffering from a rare and potentially fatal genetic disease will have access to medicines for the first time, with the launch of the HAEi Global Access Program (HAEi [...]

State of Management of HAE in Europe – 2011

Here you can download the 2011 HAEi Patient Advocacy Forum report "State of Management of HAE in Europe" English version - "State of Management of HAE in Europe" German version - "Stand der HAE-Behandlung in Europa" Spanish version - "El Estado del Manejo del AEH en Europa" Italian version - "Stato della gestione dell'HAE in Europa" Danish version - "Europas nuværende behandlingstilgang til [...]