For the 2016 version of the awareness day hae day :-) the global organization HAEi and the Spanish HAE organization AEDAF will bring together HAE patients, relatives, caregivers, doctors, nurses, and industry for a mutual experience: An walk on the pilgrimage route El Camino de Santiago (The Way of St. James) to the shrine of the apostle Santiago (St. James) in the Cathedral of Santiago de Compostela in the northwestern part of Spain.
Over three days (15 to 17 May 2016) the participants will walk three fairly short legs of the Camino (~20, ~15 and ~13 km), allowing everyone interested to take part. And there will be ample time to see things, go places, rest, and just be together.
At the moment there are 80 participants in the HAE Camino Walk – coming from USA (18), Spain (17), Mexico (11), Canada (9), Argentina (5), Brazil (3), Italy (3), Venezuela (3), Australia (2), Denmark (2), Hungary (2), Japan (2), New Zealand (2), and Sweden (1).
As there is tremendous interest from all over the world the 2016 HAE Global Conference will be a truly global event.
Go to the conference website here.
The British graphic designer Leo Griffin of leogriffin.dk has been so very kind to donate a logo for the HAE Camino Walk.
Link to a brochure on “The French Way” which is the part of the Camino that we will be walking.
