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GC2018 2018-07-12T22:47:12+00:00

HAE Friends around the Globe!

The 2018 HAE Global Conference in Vienna, Austria was a record-breaking gathering of 736 patients, caregivers, physician/researchers, and pharmaceutical company representatives from 57 countries throughout the globe.

Please enjoy the highlights of Vienna 2018!

Warm regards,

Anthony J. Castaldo
President, HAEi

Delegates from all over the world

GC18 kort Rikke Placeholder
GC18 kort Rikke

The 2018 HAE Global Conference in numbers

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Delegates
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Countries
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Number of keynote speeches
9 % attended the Youngsters’ track
19 % attended the Scientific track
72 % attended the Patients’ track

Program highlights

Keynote speakers 

  • “Take Control: Don’t let HAE hold you back” – Mr. Yujin Yamamoto, HAE Patient (Japan)
  • “Take Control of HAE with Real-World Data” – Prof. Marco Cicardi, Milan University (Italy)
  • “Take Control of HAE – New Advances and Approaches” – Prof. Allen Kaplan, Medical University of South Carolina (USA)
  • “Take Control: Dealing with Public Authorities” – Minister of Health, MD, Ph.D. Venko Filipce (Macedonia)
  • “Take Control: The Science of Improving HAE Care” – Prof. Bruce Zuraw, US HAEA Angioedema Center (USA)
  • “Take Control: The Science of Improving HAE Care” – Prof. Konrad Bork, University Medical Center, Mainz (Germany)
  • “Take Control: The Science of Improving HAE Care” – Prof. Marco Cicardi, Milan University (Italy)
  • “Take Control: Stay Motivated” – Mr. Mark Anthony, motivational speaker (Denmark)
  • “Take Control: Now and the future” – Prof. Marc Riedl, US HAEA Angioedema Center (USA)
  • “Take Control: Now and the future” – Prof. Markus Magerl, Charité – Universitätsmedizin Berlin (Germany)

Scientific track

  • 7 abstracts chosen for presentation at the conference
  • 17 abstracts accepted for poster presentation

Patient and General track

  • Regional perspective from South East Europe and the Mediterranean
  • Regional perspective from Central Eastern Europe, the Middle East, and Africa
  • Regional perspective from Latin America
  • Worldwide perspective – USA, Canada, United Kingdom, Scandinavia, Japan, and Australia
  • Questions & answers session with international HAE experts

Youngsters track

  • Creating a youngsters community
  • Weekend project – website and magazine
  • Patient & physician talk – two sessions (up to 15 years old and 16+)
  • Take control of your game plan

Youngsters Track

A central initiative at the 2018 HAE Global Conference

For this conference, we ran a two-day special track for youngsters, who are diagnosed with HAE.

Like for the 2016 HAE Global Conference we wanted to create a space, where youngsters could talk with other youngsters about their experiences and challenges with HAE.

92 % of the respondents rated the conference as either “extremely useful” or “useful”
95 % of the attendees would attend another global conference
95 % would recommend the conference to others

“I loved my very first global conference, met some great people from other countries, learned some great information about the research of HAE and exploring Vienna was wonderful too.”

“It was spectacular, informative, fun and life-changing.”

“The conference was a great opportunity to interact with other patients, doctors, lab representatives, and other people of the HAE world. It was an enriching and motivating experience that helps us really think of how much control we can have over HAE if we keep updated and connected with others.”

“The global conference is a great opportunity to learn from physicians, caregivers, and patients in other countries and the successes and challenges of managing their HAE.”

“An extremely well organized and attended event. It is so encouraging to see so many HAE patients and caregivers from all over the world gathering together to learn, share, and support each other. Thank you HAEi for the opportunities you have given us.”

“This conference brought knowledge that is priceless to me as a caregiver for my daughter. My daughter gained an amazing support group from the youth program! I left the conference feeling like I wanted to be more involved! An amazing conference that we truly feel honored to have been part of!”

“The global conference is for HAE patients, caregivers, and providers who want to embrace the challenges of HAE and create a legacy of empowerment, connectedness, and fun.”

“Attendance at the global conference not only helped open new doors for personal growth and coping skills but gave an opportunity to meet others from around the world and make new friendships.”

Enjoy some of the great moments from the 2018 HAE Global Conference

View video footage from the 2018 HAE Global Conference

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Sponsors of the 2018 HAE Global Conference

Diamond

Gold

Basic