NEWS

BioCryst presents new real-world data showing rapid, substantial and sustained HAE attack rate reductions after beginning Orladeyo (berotralstat) treatment

February 23, 2024|HAEi News|

BioCryst presents new real-world data showing rapid, substantial and sustained HAE attack rate reductions after beginning Orladeyo (berotralstat) treatment Biocryst Pharmaceuticals Inc today announced new analyses of real-world use of oral, once-daily Orladeyo (berotralstat) [...]

Astria to present at upcoming AAAAI Annual Meeting

February 20, 2024|HAEi News|

Astria Therapeutics to present at upcoming American Academy of Allergy, Asthma & Immunology (AAAAI) Annual Meeting Astra Therapeutics today announced that it will present final STAR-0215 Phase 1a healthy subject data at the upcoming [...]

BioCryst launches Orladeyo (berotralstat) in Italy

February 19, 2024|HAEi News|

BioCryst launches Orladeyo (berotralstat) in Italy BioCryst Pharmaceuticals Inc today announced that the Italian Medicines Agency, Agenzia Italiana del Farmaco (AIFA), has finalized reimbursement and recommended Orladeyo (berotralstat) for the routine prevention of recurrent [...]

KalVista awarded UK innovation passport for sebetralstat

February 16, 2024|HAEi News|

KalVista Pharmaceuticals awarded UK innovation passport for sebetralstat KalVista Pharmaceuticals today announced the UK Medicines and Healthcare products Regulatory Agency (MHRA) has awarded the Innovation Passport for sebetralstat, an investigational novel, oral plasma kallikrein [...]

News from Venezuela

January 29, 2024|Venezuela|

From Wilfredo Bocaranda, President, HAE Venezuela HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in [...]

News from USA

January 29, 2024|North America, United States of America|

From Jess Myers, Communication and Advocacy Specialist, US HAEA US HAEA Advocacy Update: The US HAEA advocacy team has been hard at work this year to fight against harmful policies that prevent Americans with [...]

News from the UK

January 29, 2024|Europe, United Kingdom|

From Angela Metcalfe, CEO of HAE UK Goodness, it has been a very busy year for HAE UK! As CEO, I was delighted to attend the 2023 HAEi Regional Conference EMEA in Munich at [...]

News from Tunisia

January 29, 2024|Africa, Tunisia|

From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 [...]

News from Switzerland

January 29, 2024|Europe, Switzerland|

From Helene Saam, President, HAE Switzerland The highlights in 2023 for the Swiss HAE Association were as follows: Production of the film ‘HAE - Simply Explained’ >> Watch the film with German, English, French, [...]

News from South Korea

January 29, 2024|East & Southeast Asia, South Korea|

From Soojin Min, HAE Korea Start of Welfare for the Weak! National Assembly Debate to Improve the Quality of Life of Patients with Rare Diseases in Medical Blind Spots: On Tuesday, 12 September, The [...]

News from South Africa

January 29, 2024|Africa, South Africa|

From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our [...]

News from Slovenia

January 29, 2024|Slovenia|

From Teja Iskra, HAE Slovenia After years of struggle and struggle, my family once again helped me so that I could fulfill my dreams. Finally, I can proudly say that the HAE Slovenia Patient [...]

News from Singapore

January 29, 2024|East & Southeast Asia, Singapore|

From Lim Yong Hao, HAE Singapore HAE Singapore’s membership has recently broken into double digits with 11 members, consisting of patients and caregivers. We are slowly growing and hope to reach and engage the [...]

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