Pharming Group N.V. supports the Fifth Annual International Hereditary Angioedema Day, hae day :-) taking place on 16 May 2016 and aiming to raise awareness around HAE.
hae day :-) is coordinated by the HAEi, the International Patient Organization for C1-Inhibitor Deficiency, along with direct support of its Member Organizations and encourages patient organizations from across the globe to organize awareness-raising activities around the theme “Many faces, one family”. This specific day aims to raise awareness of HAE among the general public and medical community in order to create an environment with earlier and faster diagnosis, improved patient care, knowledge and therapy conditions that ensure HAE patients and their families can lead normal lives.
As part of its global commitment to improving the lives of patients with HAE and their caregivers, Pharming participates in the HAEi Global Access Program initiative (http://haei.org/hae/global_access_program/) as well as in several multi-country studies and projects aimed at improving patients’ quality of life.
“HAE is a complicated disease that can sometimes take many years to diagnose. As frequently indicated by experts, HAE has many different faces. For this reason, hae day :-) is an important event, which raises awareness of this serious condition and helps to ensure that patients are diagnosed earlier and treated safely”, said Dr Sijmen de Vries, CEO of Pharming Group NV. “At Pharming, we have been collaborating with the HAE community since 2000. We are delighted to support this year’s fifth anniversary of hae day :-). We are very proud of the difference in patients’ and their families’ lives that we can make together with HAEi and its local affiliates”.
“HAEi is excited to celebrate the 5th anniversary of hae day :-)”, said Henrik Balle Boysen, Executive Director of HAEi. ”We are pleased that over the years hae day :-) events have fostered increased awareness about this debilitating and potentially fatal condition. We are confident that hae day :-) 2016, along with other supportive initiatives, will continue the momentum towards more timely diagnosis and improved access to life-saving therapies”.
To learn more about the hae day :-) events happening in your regional area, please visit http://www.haeday.org.