This input is dated May 2021
In brief
- Name for organization: Hereditary Angioedema Pakistan
- 15 members at 1 Jan 2021
- Name of approved HAE treatments: None
Fun/interesting facts
- The world’s second highest mountain, K2, is located in Pakistan.
- Pakistan has all weather seasons at the same time, all the year.
- Cricket is most popular game in Pakistan.
What positive changes have happened for people with HAE, in your country, from 2012 to now?
Organising and establishing an HAE group, finding HAE knowledgeable physicians in Pakistan and having information on HAEi.org
What is the biggest achievement for people with HAE, in your country, from 2012 to now?
The biggest achievement is that we are now recognised by HAEi and we are a part of them.
What is the resource, event or activity that you are most proud of organizing for people with HAE in your country, from 2012 to now?
In the start of 2020 Hae Pakistan started an awareness campaign via social media and for the first time we announced the names of 4 doctors for handling Hae in different cities.
That is the most proud moment for us.
What support/ resources have you used from HAEi? What has HAEi helped you to achieve?
HAEi is providing technical support in our awareness campaign. HAEi has helped with designing and hosting a web page of HAE Pakistan. We are committed to bringing the latest test facilities in Pakistan and we hope to bring modern treatments for HAE patients.
Your Next Step… What do you want to achieve for people with HAE in your country by 2030?
We want to establish our association that will provide modern treatments free of cost to every individual in Pakistan so HAE patients would live a better life like normal people.
