Welcome to the 2021 HAEi
Virtual Regional Workshop
Middle East, North Africa
and Sub Sahara Africa 

2021 HAEi Virtual Regional Workshop MENA & SSA

Captions in 3 languages for you

We have recorded the videos in the native language of the speaker and then added translated captions in English, French and Arabic to each video.

To choose the preferred language click on the small ‘CC‘ button in the right hand lower corner of the video.

DES SOUS-TITRES SONT DISPONIBLES EN 3 LANGUES

Nous avons enregistré les vidéos dans la langue maternelle du locuteur, puis ajouté des sous-titres en anglais, français et arabe pour chaque vidéo.

Pour choisir la langue préférée, cliquez sur le petit bouton « CC » situé dans le coin inférieur droit de la vidéo

ترجمة بثلاث لغات من أجلك

لقد قمنا بتسجيل مقاطع الفيديو بلغة المتحدث الأم ثم أضفنا ترجمات باللغات الإنجليزية والفرنسية والعربية إلى كل مقطع فيديو.

لاختيار اللغة المفضلة، انقر فوق الزر الصغير “CC” الموجود في الزاوية السفلية اليمنى من الفيديو.

Quick links – go directly to the track you want to explore
LIENS RAPIDES – ALLEZ DIRECTEMENT À LA PAGE QUE VOUS SOUHAITEZ EXPLORER
روابط سريعة – انتقل مباشرة إلى المسار الذي تريد استكشافه

Welcome
Bienvenue
مرحبًا

HAE International

Member Organizations
Organisations membres
المنظمات الأعضاء

Youngsters
Jeunes
الشباب

Experts
Experts
الخبراء

Welcome to the virtual workshop

In the videos below representatives from HAE International and our RPAs Maria Ferron, Patricia Karani and Michal Rutkowski welcome you to the workshop.

Welcome messages from HAE International: Anthony J. Castaldo, Henrik Balle Boysen, and Fiona Wardman

Welcome message from HAEi’s Regional Patient Advocate Maria Ferron

Welcome message from HAEi’s Regional Patient Advocate Patricia Karani

Welcome message from HAEi’s Regional Patient Advocate Michal Rutkowski

Quick links – go directly to the track you want to explore
LIENS RAPIDES – ALLEZ DIRECTEMENT À LA PAGE QUE VOUS SOUHAITEZ EXPLORER
روابط سريعة – انتقل مباشرة إلى المسار الذي تريد استكشافه

Welcome
Bienvenue
مرحبًا

HAE International

Member Organizations
Organisations membres
المنظمات الأعضاء

Youngsters
Jeunes
الشباب

Experts
Experts
الخبراء

About HAE International

In these videos you can learn more about HAEi’s Decentralisation Approach, how HAEi is Building the Foundation for a Better Future and how things are progressing with the new joint venture between HAEi and GA2LEN to establish the GA2LEN/HAEi Angioedema Centers of Reference and Excellence – or in short ACARE. You will also find videos about some of HAEi’s many resources for member organizations.

HAEi’s Decentralisation Approach by Fiona Wardman

Building the Foundation for a Better Future by Anthony J. Castaldo and Henrik Balle Boysen

ACARE by Anthony J. Castaldo and Prof. Marcus Maurer

HAEi Resources: Emergency Cards and hosted websites by Patricia Karani

‘HAE TrackR App – easy-to-use electronic diary to track HAE’ by Michal Rutkowski

Open HAE TrackR now and start using it today

>> Click to go to HAE TrackR

Or scan the QR code

HAEi Resources: HAEi Connect – the secure member database by Maria Ferron

Quick links – go directly to the track you want to explore
LIENS RAPIDES – ALLEZ DIRECTEMENT À LA PAGE QUE VOUS SOUHAITEZ EXPLORER
روابط سريعة – انتقل مباشرة إلى المسار الذي تريد استكشافه

Welcome
Bienvenue
مرحبًا

HAE International

Member Organizations
Organisations membres
المنظمات الأعضاء

Youngsters
Jeunes
الشباب

Experts
Experts
الخبراء

Quick links – go directly to the track you want to explore
LIENS RAPIDES – ALLEZ DIRECTEMENT À LA PAGE QUE VOUS SOUHAITEZ EXPLORER
روابط سريعة – انتقل مباشرة إلى المسار الذي تريد استكشافه

Welcome
Bienvenue
مرحبًا

HAE International

Member Organizations
Organisations membres
المنظمات الأعضاء

Youngsters
Jeunes
الشباب

Experts
Experts
الخبراء

Youngsters

Enjoy presentations from youngsters Joud Maghnie, Nanna Boysen, and the HAEi Youngsters Community introduction by Advisory Group members, Eirini Giannakidi and Hana Faulds. With a special video presentation by Rashad Matraji.

‘HAEi Youngsters’ Community resources’ by Eirini and Hana

‘Getting involved in your national member organization’ by Nanna

‘Living live to the fullest’ by Rashad (interview)

‘Living with HAE’ by Joud

Quick links – go directly to the track you want to explore
LIENS RAPIDES – ALLEZ DIRECTEMENT À LA PAGE QUE VOUS SOUHAITEZ EXPLORER
روابط سريعة – انتقل مباشرة إلى المسار الذي تريد استكشافه

Welcome
Bienvenue
مرحبًا

HAE International

Member Organizations
Organisations membres
المنظمات الأعضاء

Youngsters
Jeunes
الشباب

Experts
Experts
الخبراء

Experts

These presentations from physicians from the region provide information about statistics, research results and data from studies, case studies and alike.

‘Background on HAE (Q&A)’ by Dr. Loie Goronfolah

‘Advanced diagnostic’ by Dr. Fares Zaitoun

‘Clinical assesment with no lab access’ by Dr. Priya Bowry

‘Recommended on-demand therapies’ by Prof. Nahla Erwa

‘Long term prophylaxis’ by Dr. Mohamed Abuzakouk

‘Treating HAE without access to modern therapies’ by Dr. Ahmed Otman

‘HAEi Global Access Program – a feasible solution for patients and physicians’ by Prof. Jonathan Peter

‘HAE and pregnancy’ by Dr. Khadija Moussayer

‘Children with HAE’ by Dr. Mustapha Belkahia

HAE related topics that might interest you

Global Perspectives

Magazine with timely information on the issues, activities, and events that are relevant to the global HAE community

HAEi Advocacy Academy

Courses, advocacy training, and tools to support people living with HAE and becoming an HAE advocate

HAEi Connect Member database

Free, secure online membership database and communications platform for HAEi’s member organizations

HAE Companion app

Access to HAEi’s emergency card in many languages and ACARE Centers, HAE knowledgeable hospitals and physicians

Stay tuned – sign up for our newsletter

BE THE FIRST TO KNOW ABOUT HAE NEWS, TREATMENTS, EVENTS AND RELATED TOPICS

HAEi hosted websites

Hosting of your national website or help for you to create a new website – naturally all in your native language

HAE TrackR app

Easy-to-use electronic diary of HAE treatments (preventative and on-demand), HAE attacks, and the impact HAE has on life