About Steen Bjerre

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So far Steen Bjerre has created 322 blog entries.

66 Million USD financing of development of oral HAE therapy

2019-09-10T16:47:17+02:00September 10, 2019|HAEi News|

The clinical-stage company Pharvaris B.V. which is focused on the discovery and development of novel oral B2-receptor antagonists for the treatment of HAE, has completed a 66 million USD Series B financing. In addition, the company announces its entry into clinical development with the initiation of a Phase 1 study of its lead compound, PHA121, in [...]

Novel treatments for HAE

2019-08-13T09:57:18+02:00August 13, 2019|HAEi News|

At the presentation of the financial results for the quarter ended 30 June 2019, Kenneth T. Mills, President and CEO of the clinical-stage biotechnology company REGENXBIO Inc., said: "We recently announced the expansion of our pipeline using NAV Vectors to deliver therapeutic antibodies, beginning with novel treatments for HAE. This approach has enormous potential for patients [...]

New drug application on-track

2019-08-13T09:27:10+02:00August 13, 2019|HAEi News|

BioCryst Pharmaceuticals, Inc. has announced the financial results for the second quarter ended 30 June 2019 and provided a corporate update. “We have just returned from the 2019 HAEA National Patient Summit with more than 1,000 attendees from the U.S. and around the world. Patients’ excitement about BCX7353 was resounding as they told us an oral [...]

News from Hungary

2019-07-16T17:26:54+02:00July 16, 2019|Hungary|

Over four days in the last part of May 2019, an international scientific conference on C1-INH deficiency was held for the 11th time in Budapest, Hungary. This year, another word was added to the title of the event, now reading “11th C1-INH Deficiency & Angioedema Workshop”. “This designation better reflects the agenda of the conference, because it has become a forum [...]

News from South Africa

2019-07-16T17:22:25+02:00July 16, 2019|South Africa|

A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows healthcare [...]

News from Denmark, Norway and Sweden

2019-07-16T16:48:48+02:00July 16, 2019|Denmark, Norway, Sweden|

Leading HAE experts from Scandinavia will be speaking at the third HAE Scandinavia conference taking place in Oslo, Norway 8-10 November 2019. Among the speakers are: Christian Jervelund from Copenhagen Economics – speaking on health and socioeconomic topics underlining the importance of access to the right treatment, Dr Linn Landrø from Oslo University Hospital, Norway – speaking on [...]

News from Israel

2019-07-16T16:43:36+02:00July 16, 2019|Israel|

For hae day :-) 2019 HAE Israel had a patient gathering with the medical companies and the doctors from the major hospitals. The theme was HAE the past, present and future – and there were a few lectures of the doctors regarding the innovations, about pregnancy and genetics. There was also a lecture on using the salutogenic model to manage HAE, [...]

News from North Macedonia

2019-07-16T16:37:49+02:00July 16, 2019|North Macedonia|

From Natasa Angjeleska, HAE Macedonia: HAE Macedonia marked hae day :-) 2019 with a puppet show based on a story written by me about the  “Rare boy and the talkative balloon”. The story explains the sorrow of a boy that gets an HAE attack while being at a birthday party. He meets a balloon that started to puff out as [...]

News from Brazil

2019-07-16T21:11:50+02:00July 16, 2019|Brazil|

The first half of 2019 has been pretty busy for HAE Brazil (ABRANGHE). The calendar of the three months includes the signing of an access program in Sao Paulo, meetings on rare diseases in Rio de Janeiro and Sao Paulo, another talk in Bom Despacho, and a presentation for doctors in Brasilia. ABRANGHE organized a number of events all over [...]

News from Saudi Arabia

2019-07-16T16:26:13+02:00July 16, 2019|Saudi Arabia|

One more HAE knowledgeable doctor has been located in the Kingdom of Saudi Arabia. He is Dr Farrukh R. Sheikh, the Program Director for Allergy & Immunology at the King Faisal Specialist Hospital and Research Centre in Riyadh – see his contact information at