From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received by the panel; however, unfortunately, the government at this time rejected the results of the submission. The panel have recognized that there is [...]
Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.
Mid September 2019 HAE International could welcome Paraguay as the 77th member country of the global HAE organization. National contact is Nathalia Portillo – see more at https://haei.org/location/hae-paraguay.
From President Jacquie Badiou and Daphne Dumbrille from the HAE Canada office Summers are always too short and 2019 was no exception. July was particularly eventful for two HAE Canada Youth members, Paige and Makayla, who were fortunate to attend HAEi’s Youngsters Summer Camp in Atlanta. Their experience is best heard from their perspectives: Paige: This July I attended a Youth [...]
From President Sarah Smith In Memoriam Professor Marco Cicardi: On Sunday 15 September, AEDAF attended the “Hereditary Angioedema” Lunch Seminar of the 17th European Meeting on Complement in Human Disease, held in Madrid 14-17 September, to which Professor Marco Cicardi had been invited to speak on “New treatments for HAE”. Because of Prof. Cicardi’s unexpected death in August, the session was reorganized [...]
The HAE International world map has been updated with four HAE knowledgeable hospitals in the Czech Republic – have a look at https://haei.org/hae-membercountries/czech-republic.