HAE Lithuania has signed up as the 81st member organization of HAE International. Laura Malinauskiene is the national contact for Lithuania.
An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics and treatment options.
On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about positive changes and constructive mindset in a mundane environment. This year the funds raised were intended for HAE Macedonia. The team of [...]
The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with resources.
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the Association of Rare Diseases in Guatemala.
From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July Hana Faulds attended the youth camp in Atlanta and learnt lots about advocacy, which we intend to incorporate in future plans. Here [...]