A ‘one-of-a-kind’ medication access program from HAE International (HAEi) is now successfully delivering potentially life-saving medication to patients in South Africa, who suffer from the rare genetic condition hereditary angioedema (HAE). HAE causes severe and unpredictable swelling (edema) in different areas of the body including the hands, feet, and face. Patients experience bouts of excruciating [...]
More and more HAE related activities are going on around the world. In the December 2017 issue of the HAEi magazine 'Global Perspectives’ you can - for example - read about: The 2018 HAE Global Conference in Vienna, Austria News from the HAEi Regional Patient Advocates HAEi South Easter Europe Workshop 2017 HAEi Central Easter Europe [...]
More and more HAE related activities are going on around the world. In fact, we think it is safe to say that there has never been so many exciting events and HAE news to tell about as in the September 2017 issue of the HAEi magazine 'Global Perspectives’. Read about: The 2018 HAE Global Conference [...]
On May the 16th HAE patient organizations from around the world, led by HAEi come together to support the global awareness day for HAE. Dr Sijmen de Vries, Pharming’s CEO commented: "We are proud to provide the first and only recombinant (C1- esterase inhibitor) protein replacement therapy for the treatment of acute angioedema attacks in [...]
We are excited to inform you that the first edition of "Global Perspectives" in 2017 - the HAEi magazine - is out now. Please download it here.