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So far PlusR has created 58 blog entries.

Updates from the HAEi Youngsters’ Community

2020-07-09T12:02:31+02:00July 9, 2020|HAEi News|

It has been almost two and a half years since the idea of the HAEi Youngsters Community was officially launched at the 2018 HAE Global Conference in Vienna, Austria. However, young HAE patients have been connecting online and staying in touch long before that. “At HAE International we are happy to be able to support [...]

True Partnership can Bring the Best to Patient Care

2020-07-09T12:02:31+02:00July 9, 2020|HAEi News|

Late 2019, HAE International and the non-profit organization of leading clinical and research facilities in the field of allergy and asthma GA2LEN established GA2LEN/HAEi Angioedema Centers of Reference and Excellence – or in short ACARE. The joint venture with GA2LEN fulfills HAE International’s longstanding goal of establishing a worldwide network of accredited angioedema care centers. [...]

Emergency Card now in 34 languages

2020-07-09T12:02:31+02:00July 9, 2020|HAEi News|

No matter if your preferred language is Arabic, Chinese, Greek, Latvian or Spanish there is an Emergency Card from HAE International for you. “As a matter of fact, we are presently at 34 languages and thereby covering a large portion of the globe”, says Henrik Balle Boysen, Executive Vice President & COO of HAE International: [...]

News from Panama

2020-07-08T18:14:02+02:00July 8, 2020|Central America and Caribbean, Panama|

Due to the restrictions that have been implemented in several countries, not many countries held events related to hae day :-) 2020. In Panama the group of patients managed two religious services that were dedicated on behalf of the health of patients with HAE in that country. Religious services were broadcast live on television [...]

News from Spain

2020-07-08T18:09:48+02:00July 8, 2020|Europe, Spain|

From President Sarah Smith, AEDAF Awareness day: After having to cancel its 22nd General Assembly and Annual Meeting, which was due to take place in April, and with very strict confinement measures in Spain as of mid-March due to Covid-19, AEDAF did decide to carry on with the project it had planned for hae [...]

News from Russia

2020-07-08T18:05:02+02:00July 8, 2020|Europe, Russia|

From Chairman Elena Bezbozhnaya, HAE Russia Under quarantine, providing support for patients with HAE takes on special significance. HAE Russia launched a new online project for children and held several remote meetings for members for the patients to receive medical and legal advice. Call a friend: In March, we launched a new psycho-emotional support [...]