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So far PlusR has created 17 blog entries.

News from Mexico and South America

2019-07-09T13:14:31+02:00July 9, 2019|Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Peru, South America, Uruguay, Venezuela|

From Fernanda de Oliveira Martins, Regional Patient Advocate for Mexico and South America GENERAL 27-28 April 2019, I organized a meeting for the leaders of the national HAE patients’ associations in South America and Mexico. The gathering took place in Bogota, Colombia and the represented countries were Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Paraguay, [...]

Life-saving medication to South African HAE patients

2019-07-09T13:31:43+02:00July 8, 2019|Africa|

A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows [...]

11th C1-INH Deficiency & Angioedema Workshop

2019-07-09T13:31:52+02:00July 8, 2019|Hungary|

Over four days in the last part of May 2019, an international scientific conference on C1-INH deficiency was held for the 11th time in Budapest, Hungary. This year, another word was added to the title of the event, now reading “11th C1-INH Deficiency & Angioedema Workshop”. “This designation better reflects the agenda of the [...]

“Global Perspectives” #2/2019 out now

2019-07-08T08:40:09+02:00July 6, 2019|HAEi News, Newsletters|

Dear HAE friends, Welcome to the second 2019 issue of the HAEi magazine Global Perspectives. This time you will, among many other items, find information on: News from the HAEi Regional Patient Advocates Life-saving medication to South African HAE patients Another success on the road to Santiago 11th C1-INH Deficiency & Angioedema Workshop including summaries [...]

News from Mediterranean

2019-07-09T13:44:39+02:00April 7, 2019|Algeria, Cyprus, France, Greece, Israel, Italy, Morocco, Portugal, Spain|

Maria Ferron, Regional Patient Advocate for Mediterranean MOROCCO 19 January 2019 AMMAO (HAE Morocco) held the first meeting as an official association with 115 attendees. Maria attended on behalf of HAEi introducing the association, projects, and activities to the Moroccan community. Presently Maria is supporting AMMAO on hosting their website under the HAEi umbrella. PORTUGAL [...]

News from Gulf Region and Middle East

2019-07-09T13:44:49+02:00April 7, 2019|Algeria, Egypt, Iran, Kuwait, Lebanon, Libya, Morocco, Qatar, United Arab Emirates|

Rashad Matraji, Regional Patient Advocate for Gulf Region and Middle East LEBANON  Together with a Lebanese doctor Rashad has been working on a meeting leading up to the WAO Inter-national Scientific Conference in Beirut in April 2019. KUWAIT, QATAR In both countries Rashad has helped in identifying patients who have agreed to become the [...]

News from Central America and the Caribbean

2019-07-09T13:44:56+02:00April 7, 2019|Central America and Caribbean, Costa Rica, Cuba, El Salvador, Guatemala, Panama, Puerto Rico|

Javier Santana, Regional Patient Advocate for Central America and the Caribbean PANAMÁ Javier is planning a trip to Panama to meet with the patient group and offer a workshop on how to create awareness events, media interviewing tips, and addressing government issues. COSTA RICA In February 2019 HAE Costa Rica held the first conference on [...]

News from Central & Eastern Europe

2019-07-09T13:45:05+02:00April 7, 2019|Belarus, Central Asia, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Slovakia, Ukraine|

Michal Rutkowski, Regional Patient Advocate for Central & Eastern Europe LITHUANIA Michal is in contact with a doctor from Vilnius who has shown interest in joining the HAE Global Registry project. The doctor sees around 10 HAE patients. RUSSIA Michal has been invited to attend the “Scientific and Practical International HAE Conference” that HAE Russia [...]

News from South Eastern Europe

2019-07-09T13:37:04+02:00April 7, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe SERBIA In February 2019 Natasa participated in the annual patient meeting of HAE Serbia delivering a presentation entitled ”The incredible power of advocacy”. The program also included addresses from two physicians about the therapeutic options for HAE and patients heard about the bureaucratic procedures regarding receiving medication. [...]

News from Mexico and South America

2019-07-09T13:37:10+02:00April 7, 2019|Argentina, Brazil, Chile, Colombia, Ecuador, Mexico, Peru, South America, Uruguay, Venezuela|

Fernanda de Oliveira Martins, Regional Patient Advocate for Mexico and South America GENERAL Fernanda is presently working on the agenda for a regional meeting that is to take place 27-28 April 2019 in Bogotá, Colombia. ECUADOR The HAE organization is working on a letter to the Ministry of Health to include HAE as a serious illness. PARAGUAY Fernanda [...]