Rikke

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So far PlusR has created 36 blog entries.

News from Mediterranean, North Africa and British Isles

2020-07-01T13:59:22+02:00June 29, 2020|Europe, HAEi News, Ireland, United Kingdom|

  From Regional Patient Advocate Maria Ferron Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional [...]

News from Caribbean and Central America

2020-07-01T13:59:13+02:00June 29, 2020|Central America and Caribbean, Dominican Republic, HAEi News, Puerto Rico|

  From Regional Patient Advocate Javier Santana During the past months, many patients in the Latin American region have been pending all the information related to the global pandemic coronavirus COVID-19. During the month of March, a virtual conference was held in Spanish so that Spanish-speaking patients who wanted to clarify doubts about coronavirus and [...]

News from South America & Mexico

2020-07-01T13:59:10+02:00June 29, 2020|HAEi News, North America, South America, Venezuela|

  From Regional Patient Advocate Fernanda de Oliveira Martins I have had an online meeting with the President of Society of Allergies, Asthma and Immunology Dr. Joselit Torres and the President of HAE Venezuela Wilfredo Bocaranda. Topics discussed included identifying HAE and its treatments in crisis. Questions and concerns from patients registered with the foundation [...]

News from Asia Pacific

2020-07-01T13:59:05+02:00June 29, 2020|Australia/Oceania, Bangladesh, East & Southeast Asia, HAEi News, India, Pakistan, Singapore, South Asia|

  From Regional Patient Advocate Fiona Wardman I had planned to hold the first HAEi Regional Workshop Asia Pacific in Singapore in April; however, due to COVID-19, the workshop has been postponed until we are all safe to travel again. I’m happy to report that we have two new patient groups in the Asia Pacific [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

News from Central Eastern Europe, Benelux and Middle East

2020-07-01T13:58:57+02:00June 29, 2020|Bahrain, Belarus, Central Asia, Estonia, Europe, HAEi News, Iraq, Kazakhstan, Latvia, Middle East, Poland, Saudi Arabia, Syria, Ukraine|

  From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]

HAEi Video Q&A: COVID-19 and HAE with Prof. Marcus Maurer

2020-04-15T15:12:47+02:00April 15, 2020|HAEi News|

HAEi has recorded a Q&A about COVID-19 and HAE as part of our commitment to providing the global community with useful information during the pandemic.  The video features HAEi Chief Medical Advisor, Prof. Marcus Maurer from Charité University Hospital in Berlin, who responds to questions from HAEi President and CEO, Tony Castaldo. Please feel [...]

News from Costa Rica

2020-04-11T13:21:51+02:00April 11, 2020|Costa Rica|

From Regional Patient Advocate Javier Santana: I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. The first National Forum of Rare Diseases in Costa Rica was held [...]

Maintain mental health during COVID-19 (Novel Coronavirus)

2020-04-10T14:07:51+02:00April 10, 2020|HAEi News|

At HAEi we do not only care deeply about your physical health, but also that you and your family can maintain your mental health during these challenging times. Therefore, we have created this infographic that we hope you will find useful. Maintain social distancing, take care of your mental health, and stay safe! Your HAEi [...]