Rikke

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So far PlusR has created 16 blog entries.

Information about COVID-19 and angioedema

2020-03-24T17:09:15+02:00March 24, 2020|HAEi News|

Dear HAEi Friends, The health and well-being of our global community is HAEi’s top priority. With that in mind, we asked our medical experts to provide their best thinking regarding the COVID-19 virus health risks that might be faced by people who have hereditary angioedema and other forms of recurrent angioedema. COVID-19 is a [...]

Message from HAEi president Anthony J. Castaldo

2020-03-23T16:34:49+02:00March 23, 2020|HAEi News|

Dear HAEi Friends, On behalf of the HAEi Board of Directors and the entire HAEi team, I would like to extend our heartfelt wishes for the health and safety of you and your families as you deal with COVID 19 Coronavirus pandemic. HAEi cares deeply about the health and well-being of the wonderful people [...]

CANCELLATION: 2020 HAE Global Conference

2020-03-18T20:23:27+02:00March 18, 2020|HAEi News|

The health and well-being of everyone in the HAE community is of paramount importance to us! As communicated before, HAE International has been carefully monitoring the developing situation regarding COVID-19 (novel coronavirus). HAEi leadership has been meeting on a daily basis to carefully assess the evolving situation and has determined that we cannot ensure the health and safety of [...]

COVID-19 (novel coronavirus)

2020-03-12T15:35:18+02:00March 12, 2020|HAEi News|

The HAE International team continues to meet around the clock and carefully monitor the developing global situation regarding the COVID-19 (novel coronavirus), which now includes the declaration of a pandemic by the World Health Organization. We understand and share the concerns we are hearing from conference participants regarding travel and public gatherings. HAEi fully understands [...]

COVID-19 (novel coronavirus)

2020-03-12T09:14:38+02:00March 7, 2020|HAEi News|

As mentioned in the previous communication of 27 February 2020, HAE International is carefully monitoring the developing global situation regarding COVID-19 (novel coronavirus) to the extent that it could affect our upcoming 2020 HAE Global Conference in Frankfurt. The health and well-being of everyone in the HAE community is of paramount importance to us, which is why we [...]

COVID-19 (novel coronavirus)

2020-02-27T11:35:24+02:00February 27, 2020|HAEi News|

HAE International is carefully monitoring the situation regarding the COVID-19 virus to the extent that it could affect our upcoming meetings and conferences. This includes: 2020 HAEi Regional Workshop North Africa in Algeria, 6-8 March 2020 2020 HAEi Regional Workshop Asia Pacific in Singapore, 17-19 April 2020 2020 HAE Global Conference in Frankfurt, Germany, [...]

Intellia presents preclinical results

2020-02-21T09:31:37+02:00February 21, 2020|HAEi News|

Intellia Therapeutics, Inc. is presenting preclinical results for its CRISPR/Cas9-Based Therapy for HAE. “The data from our HAE development program reinforce the modularity of Intellia's non-viral delivery genome editing platform and how it is enabling independent, single-dose therapies for multiple monogenic diseases. For HAE, we expect to nominate a development candidate in the first half [...]

HAEGARDA now available in the province of Québec

2020-02-07T10:35:49+02:00February 7, 2020|Canada, HAEi News|

HAEGARDA (C1 Esterase Inhibitor Subcutaneous [Human]) is now available in the province of Québec, Canada. “The availability of a new treatment option to help health care professionals and patients prevent HAE attacks is an important milestone and great news for the HAE patient community,” said Charles St-Pierre, President of the AOHQ patient group. CSL Behring [...]

Life-saving medication to South African HAE patients

2019-07-16T13:31:49+02:00July 8, 2019|HAEi News|

A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows [...]

11th C1-INH Deficiency & Angioedema Workshop

2019-07-09T13:31:52+02:00July 8, 2019|Hungary|

Over four days in the last part of May 2019, an international scientific conference on C1-INH deficiency was held for the 11th time in Budapest, Hungary. This year, another word was added to the title of the event, now reading “11th C1-INH Deficiency & Angioedema Workshop”. “This designation better reflects the agenda of the [...]