Rikke

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So far PlusR has created 8 blog entries.

Life-saving medication to South African HAE patients

2019-07-16T13:31:49+02:00July 8, 2019|HAEi News|

A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows [...]

11th C1-INH Deficiency & Angioedema Workshop

2019-07-09T13:31:52+02:00July 8, 2019|Hungary|

Over four days in the last part of May 2019, an international scientific conference on C1-INH deficiency was held for the 11th time in Budapest, Hungary. This year, another word was added to the title of the event, now reading “11th C1-INH Deficiency & Angioedema Workshop”. “This designation better reflects the agenda of the [...]

“Global Perspectives” #2/2019 out now

2019-07-08T08:40:09+02:00July 6, 2019|HAEi News, Newsletters|

Dear HAE friends, Welcome to the second 2019 issue of the HAEi magazine Global Perspectives. This time you will, among many other items, find information on: News from the HAEi Regional Patient Advocates Life-saving medication to South African HAE patients Another success on the road to Santiago 11th C1-INH Deficiency & Angioedema Workshop including summaries [...]

The Value of Prophylactic Therapy

2019-07-17T17:32:58+02:00April 7, 2019|HAEi News, North America|

A study sponsored by the US HAEA and HAEi assess the value of the new subcutaneous prophylaxis therapies to on-demand only treatment. The results of the study were presented as a poster at the annual meeting of the American Academy of Allergy, Asthma & Immunology (AAAAI) in San Francisco, USA 22-25 February 2019. The presenters [...]

Seven in Ten!

2019-05-15T09:31:47+02:00April 7, 2019|HAEi News|

By William R. Lumry, M.D., Allergy Immunology Specialist, Clinical Professor of Internal Medicine, University of Texas Southwestern Medical School. Seven safe and effective treatments for treatment and prevention of HAE attacks have been approved and are available for treatment in various countries around the world. This occurred in only ten years! I think all of us [...]

HAEi brings hope to India

2019-07-09T13:39:44+02:00April 7, 2019|India, South Asia|

By Fiona Wardman, HAEi Chief Regional Patient Advocate Early March 2019 patients, their families, physicians, industry and other rare disease experts along with HAEi came together for the first HAE meeting in India. For most of the patients, this was also the first time they had met anyone outside of their family who knew [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-07-09T13:45:32+02:00January 14, 2019|Belarus, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]

HAEi South Eastern Europe Workshop 2018

2019-07-09T13:45:51+02:00January 14, 2019|Albania, Bulgaria, Croatia, Montenegro, North Macedonia, Romania, Serbia, Turkey|

By Natasa Angjeleska, HAEi Regional Patient Advocate South Eastern Europe Before being nominated as HAEi Regional Patient Advocate for the South Eastern Europe countries (SEE), I established communications through my colleagues from HAE Macedonia with some of the HAE patients in this region. We were motivated by the will to meet with patients from neighboring [...]