CSL reports net profit after tax for six months ending 31 December 2023 CSL Limited announced a reported net profit after tax of $1.90 billion1 for the 6 months that ended 31 December 2023, up 20% on a constant currency basis.3 Underlying profit (NPATA) was $2.02 billion,1,2 up 13% on a constant currency basis [...]
BioCryst to present new Orladeyo (berotralstat) real-world data at 2024 American Academy of Allergy, Asthma & Immunology annual meeting BioCryst Pharmaceuticals Inc today announced that the company will present five abstracts featuring new analyses of real-world use of oral, once-daily Orladeyo (berotralstat) for the prophylactic treatment of hereditary angioedema (HAE) in patients 12 years [...]
Intellia Therapeutics announces publication in the New England Journal of Medicine of positive interim phase 1 data for NTLA-2002 in patients with hereditary angioedema Intellia Therapeutics announced that interim results from the Phase 1 portion of the Phase 1/2 study of NTLA-2002 were published online in the New England Journal of Medicine (NEJM). The [...]
From Wilfredo Bocaranda, President, HAE Venezuela HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in Venezuela and offer an alternative treatment. The request for treatment is managed by the High Cost unit of Social Security [...]
From Jess Myers, Communication and Advocacy Specialist, US HAEA US HAEA Advocacy Update: The US HAEA advocacy team has been hard at work this year to fight against harmful policies that prevent Americans with HAE from accessing their lifesaving medications. Recently, there have been some exciting steps forward for HAE advocacy including: On October [...]
From Angela Metcalfe, CEO of HAE UK Goodness, it has been a very busy year for HAE UK! As CEO, I was delighted to attend the 2023 HAEi Regional Conference EMEA in Munich at the beginning of September, and very pleased to be joined by several other patients and Trustees of our charity, as [...]
From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 in the presence of the executive office and 42 patients. A board meeting was held in November to plan actions [...]
From Chen Jyun-Ting and Lim Yong Hao One of the biggest highlights in Taiwan in 2023 is the boost in the number of HAE-knowledgeable doctors and healthcare professionals. This happened because of training workshops organized and conducted by Dr. Shyur and colleagues, with the support of CSL Behring. The workshops were conducted between May [...]
From Helene Saam, President, HAE Switzerland The highlights in 2023 for the Swiss HAE Association were as follows: Production of the film ‘HAE - Simply Explained’ >> Watch the film with German, English, French, and Italian subtitles Swiss HAE Association goes Social Media HAE patient meeting with 55 participants and 5 HAE experts. [...]
From Soojin Min, HAE Korea Start of Welfare for the Weak! National Assembly Debate to Improve the Quality of Life of Patients with Rare Diseases in Medical Blind Spots: On Tuesday, 12 September, The Korean Society of Genetic Angioma held a policy discussion at the National Assembly Hall in Korea to find ways to [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
