2024-04-15T11:58:32+02:00April 15, 2024|

HAE Zimbabwe HAE Zimbabwe Zimbabwe · Africa On this page we have pulled together presently available information relevant for HAE patients and caregivers in  Zimbabwe. News and events The latest news from HAEi Click here to see a [...]

News from Venezuela

2024-01-29T12:58:16+01:00January 29, 2024|Venezuela|

From Wilfredo Bocaranda, President, HAE Venezuela HAE Venezuela held meetings with the Authorities of the Military Hospital with Doctors Guillermo Boggiano, Rommy Boggiano, and their medical team to analyze the case of patients in Venezuela and offer an alternative treatment. The request for treatment is managed by the High Cost unit of Social Security [...]

News from USA

2024-01-29T12:55:30+01:00January 29, 2024|North America, United States of America|

From Jess Myers, Communication and Advocacy Specialist, US HAEA US HAEA Advocacy Update: The US HAEA advocacy team has been hard at work this year to fight against harmful policies that prevent Americans with HAE from accessing their lifesaving medications. Recently, there have been some exciting steps forward for HAE advocacy including: On October [...]

News from Tunisia

2024-01-29T12:49:13+01:00January 29, 2024|Africa, Tunisia|

From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 in the presence of the executive office and 42 patients. A board meeting was held in November to plan actions [...]

News from Taiwan

2024-01-29T12:42:07+01:00January 29, 2024|East & Southeast Asia, Taiwan, Uncategorized|

From Chen Jyun-Ting and Lim Yong Hao One of the biggest highlights in Taiwan in 2023 is the boost in the number of HAE-knowledgeable doctors and healthcare professionals. This happened because of training workshops organized and conducted by Dr. Shyur and colleagues, with the support of CSL Behring. The workshops were conducted between May [...]

News from South Korea

2024-01-29T12:38:31+01:00January 29, 2024|East & Southeast Asia, South Korea|

From Soojin Min, HAE Korea Start of Welfare for the Weak! National Assembly Debate to Improve the Quality of Life of Patients with Rare Diseases in Medical Blind Spots: On Tuesday, 12 September, The Korean Society of Genetic Angioma held a policy discussion at the National Assembly Hall in Korea to find ways to [...]

News from South Africa

2024-01-29T12:13:10+01:00January 29, 2024|Africa, South Africa|

From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our organization and our patients, and we wish to thank everyone who contributed to this process for their dedication to making [...]

News from Slovenia

2024-01-29T12:09:51+01:00January 29, 2024|Slovenia|

From Teja Iskra, HAE Slovenia After years of struggle and struggle, my family once again helped me so that I could fulfill my dreams. Finally, I can proudly say that the HAE Slovenia Patient Association was officially founded. I’m proud that I finally made it. And now the real work begins. First and foremost, [...]

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