Oman

2022-05-16T10:59:45+02:00May 12, 2022|

HAE Oman Oman  ·  Middle East On this page we have pulled together presently available information relevant for HAE patients and caregivers in Oman. News and events The latest news from HAEi Click here to see a list [...]

Bolivia

2022-06-15T10:00:40+02:00May 11, 2022|

HAE Bolivia Bolivia  ·  South America On this page we have pulled together presently available information relevant for HAE patients and caregivers in Bolivia. HAE online in Bolivia Visit us on Facebook Visit [...]

News from Algeria

2022-05-03T16:17:50+02:00May 3, 2022|Algeria|

From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health and the Minister of the Pharmaceutical Industry. The slogan “Speaking out, gives hope! Taking actions, saves lives!” was chosen for [...]

News from Spain

2022-05-03T16:14:40+02:00May 3, 2022|Europe, Spain|

From President Sarah Smith, HAE Spain (AEDAF): General Assembly & Annual Meeting: The 24th General Assembly and Annual Meeting of AEDAF took place 26 March 2022 in La Paz Hospital in Madrid. After two years of pandemic, we are very, very happy to again be able to have an in-person meeting and to see [...]

News from Croatia

2022-05-03T16:13:35+02:00May 3, 2022|Croatia, Europe|

From President Michaela Sogoric, HAE Croatia In collaboration with psychologist Maja Batista, MD and clinical immunologist Višnja Prus, MD, PhD, HAE Croatia has designed a brochure for parents, children’s guardians and adolescents. The brochure named “Psychosocial aspects of HAE” is made in the form of an educational book that will be distributed at the [...]

News from Portugal

2022-05-03T16:11:40+02:00May 3, 2022|Europe, Portugal|

From HAE Portugal (ADAH) This past December 2021, ADAH held the second online event of its annual conference, under the theme of the advantages and challenges towards the autonomy process of patients with HAE. The occasion was meant to promote the share of up-to-date scientific knowledge on the disease, while providing an opportunity for [...]

News from Australia and New Zealand

2022-05-03T16:08:44+02:00May 3, 2022|Australia, Australia/Oceania, New Zealand|

From HAE Australasia HAE Australasia has held two in-person patient and carers meetings in February. The first meeting was held in Sydney, Australia, on 5 February, the main venue with presenters in Sydney. Brisbane and Melbourne were linked via Zoom. Other patients and carers around Australia and New Zealand could dial in to watch [...]

News from Denmark, Norway and Sweden

2022-05-03T16:03:52+02:00May 3, 2022|Denmark, Europe, Norway, Sweden|

From HAE Scandinavia We are pleased to inform you about new treatment options in Scandinavia. In Norway, ORLADEYO™ (capsule) was approved on 1 December 2021 for the preventive treatment of HAE in adults and adolescents/children from 12 years of age. In Sweden, both ORLADEYO™ (capsule) and TAKHZYRO™ (injection under the skin) were approved on [...]

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