From Regional Patient Advocate Fiona Wardman HAE South Africa is making fantastic progress on all fronts, with awareness and education of HAE in the community and acute therapy now registered! From Chairman Janice Strydom, HAE South Africa We are pleased to announce the launch of the Sinovuyo South African Virtual Angioedema Center, the first [...]
From President Patricia Karani, HAE Kenya A new HAE-knowledgeable physician – Dr. Anne Barasa – has joined our team of HAE doctors in Kenya. She is an immunopathologist based in the largest referral hospital in Nairobi, the Kenyatta National Hospital. She is also a lecturer at the Immunology unit under the Department of Human [...]
From RPA Maria Ferron The 1st General Assembly of the HAE Tunisia (ANAOH) was held on Sunday 12 March 2023. Because the greater number of HAE patients are located in the north of the country, the city Beja was chosen for the meeting. Thirty-six patients attended the meeting, and they are now planning another patient [...]
From Regional Patient Advocate Patricia Karani A new HAE patient has been identified in Mozambique. We are working with doctors in the country to ensure that she receives the best care and also make sure that medications are available for her. In Sudan, we have a new physician contact, Dr. Ahmed Seri Ibrahim, who [...]
From Regional Patient Advocate Maria Ferron 2023 has started with a lot of energy around the world. The first registration steps for the 2023 HAEi Regional Conference EMEA took place during February and March, and I have been supporting all the queries and questions raised by the Member Organizations. Due to the recent appointment [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Regional Patient Advocate Patricia Karani In Mozambique, new HAE patients have been identified and connected to a local doctor for better care, while in Namibia, a new patient family has been located, and all are currently doing well on locally available medications. Dr. Sadia Habiba is a new physician contact in Chad who [...]
From Regional Patient Advocate Maria Ferron The 2022 HAEi Global Leadership Workshop held in October was an excellent chance for everyone to share their experiences, see all the new projects and activities HAEi has implemented, and meet face-to-face with the HAE community and stakeholders. The workshop gave the Member Organizations in the region I [...]
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
From Regional Patient Advocate Maria Ferron These last months have been hectic due to the organization that the 2022 HAEi Global Leadership Workshop entails, but we were all excited to meet face-to-face again after such a long period. Firstly, I would like to say that I have delivered the posters developed by HAEi requested [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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