From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health and the Minister of the Pharmaceutical Industry. The slogan “Speaking out, gives hope! Taking actions, saves lives!” was chosen for [...]
From HAE South AfricaOn 11 January 2022 HAE South Africa embarked on a new social media campaign. As of 28 February, our Facebook reach was up by 955% compared to the previous period, with our Instagram reach growing by 330%. Our new website will be launched in the next couple of weeks.>> Have a look [...]
From Chief Regional Patient Advocate Fiona Wardman For the last few months, I have focused on catching up with the Member Organizations in the Asia Pacific region and South Africa via virtual means. It seems that everyone is looking forward to once again being able to meet face-to-face. The latest tools and resources have [...]
From Regional Patient Advocate Patricia Karani In Namibia, a new HAE patient was diagnosed. We have been working with the physician to ensure that the patient receives the best possible care with the treatments presently available. In Eritrea, a family with HAE has been found, and we are working to find a local physician [...]
From Regional Patient Advocate Maria Ferron I am happy to announce that Lanadelumab was recently approved to be used in hospitals in Portugal. Also, from Portugal, the HAE team has been working on setting up their 2022 actions plans which among others include an HAE awareness campaign (supported with an HAEi poster), creating an [...]
From HAE South Africa HAE South Africa have received our approval as a non-profit company which means we are now able to actively raise funds for our organization. We have recruited two new members onto our committee, Jane Rushton, an HAE patient, and attorney, as well as Sister Sheila Baker, a registered nurse who [...]
From Regional Patient Advocate Maria Ferron I have been advising all the member organizations in my region about the new Advocacy Academy courses developed by HAEi. This is an excellent opportunity for national organizations to take advantage of this wonderful tool to learn how to run an organization and advocate for patients. Please don’t [...]
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
Over the past couple of months, work has progressed on the HAEi Virtual Workshop for the Middle East, North Africa, and Sub Sahara Africa. We have finalized the video recordings, and I have been working with the Regional Patient Advocate for Central Eastern Europe, Benelux, and the Middle East on the new website for [...]
A team of doctors dedicated to raising awareness in Zimbabwe have opened a Facebook page to share more information with the public and fellow health care professionals. They have invited patients and caregivers to join the support group and are sharing vital information on HAE. Have a look at www.facebook.com/HAE-Zimbabwe-106229328431928. Also, Dr. Careen – [...]
HAE International (HAEi) is a global non-profit network of patient associations dedicated to raising awareness of hereditary angioedema (HAE) around the world and improving the lives of people with HAE.
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HAE International (HAEi)
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