From President Adrienne de Jongh We are in the process of registering a nonprofit company so that we can in future access funding and consolidate the organization. We have increased our register of patients to 90. In July Hana Faulds attended the youth camp in Atlanta and learnt lots about advocacy, which we intend to incorporate in future plans. Here [...]
The first HAE knowledgeable physician in Tripoli, Libya has been added to the HAE International map – please see https://haei.org/location/physician-tripoli-libya. If you are interested in following HAE Libya you should have a look at the organization’s Facebook page at https://www.facebook.com/HAE-Libya-106027060798335. HAE Libya also has a Facebook group – please see https://www.facebook.com/groups/504807226972545.
HAE TUNISIA Tunisia · Africa On this page we have pulled together presently available information relevant for HAE patients and caregivers in Tunisia. News and events The latest news from HAEi Click here to see a list of [...]
A ‘one-of-a-kind’ medication access program from HAE International is now successfully delivering potentially life-saving medication to HAE-patients in South Africa. “As no modern medications have been commercially available in South Africa until now, HAE patients have been unable to access them. The HAE International Global Access Program offers a regulatory compliant process that allows healthcare [...]
From President Patricia Karani, HAE Kenya: hae day :-) 2019 in Kenya was a day to raise media awareness amongst the public on our local television networks that are seen countrywide. I was able to feature in specific TV shows where Dr Priya Bowry, a well-known allergist in Nairobi, got to demystify the differences in types of HAE. I gave [...]
From Regional Patient Advocate Maria Ferron: Dr Habid Ghedira has agreed with a patient (and a possible patient lead in the country) and their family to have a medical appointment to provide them with an official diagnose on HAE. Once this is done, we will start looking into the possibility of prescribing them with HAE modern medication and the set up [...]
From Regional Patient Advocate Maria Ferron: On the celebration of hae day :-) 2019, the Algerian Society of Allergology and Clinical Immunology (organized by Doctor Habib Douagui) organized at Beni-Messous University Hospital a day of sensitization and information for general practitioners and patients about chronic and disabling diseases. The 10th Euro-African Congress of Allergy and Clinical Immunology was held 12-13 June [...]
From Regional Patient Advocate Patricia Karani: Together with Dr Edgar Kalimba - the new HAE knowledgeable physician in Rwanda - I organized the 2nd HAE Doctors Symposium at Kigali, Rwanda to raise more awareness amongst African doctors. Hosted by the King Faisal Hospital in collaboration with HAE International it was a well-attended event with pediatricians, doctors of internal medicine, and head [...]