From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 in the presence of the executive office and 42 patients. A board meeting was held in November to plan actions [...]
From Janice Strydom, HAE South Africa HAE SA started 2023 with the exciting announcement that icatibant, our first treatment for acute attacks of HAE, had been registered. This is a significant milestone for our organization and our patients, and we wish to thank everyone who contributed to this process for their dedication to making [...]
From Daniella Assa, HAE Mozambique Attending the 2023 HAEi Regional Conference EMEA that was held this year in Munich, Germany, gave us support, encouragement, and the necessary tools to advocate for HAE in Mozambique. We formed an HAE Mozambique patient support group. We were also able to participate in the FNB Maputo 10k race [...]
Please join us in welcoming yet another member country to the global HAE family: HAE Mozambique as member country no. 98. The national contact is Daniella Nhaguilunguana. >> Read more about HAE Mozambique on the country page Daniella shared her story as part of the Patient Voices session at the 2023 HAEi Regional Conference EMEA.
From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]
From Regional Patient Advocate Fiona Wardman HAE South Africa is making fantastic progress on all fronts, with awareness and education of HAE in the community and acute therapy now registered! From Chairman Janice Strydom, HAE South Africa We are pleased to announce the launch of the Sinovuyo South African Virtual Angioedema Center, the first [...]
From President Patricia Karani, HAE Kenya A new HAE-knowledgeable physician – Dr. Anne Barasa – has joined our team of HAE doctors in Kenya. She is an immunopathologist based in the largest referral hospital in Nairobi, the Kenyatta National Hospital. She is also a lecturer at the Immunology unit under the Department of Human [...]