From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Regional Patient Advocate Maria Ferron The 2022 HAEi Global Leadership Workshop held in October was an excellent chance for everyone to share their experiences, see all the new projects and activities HAEi has implemented, and meet face-to-face with the HAE community and stakeholders. The workshop gave the Member Organizations in the region I [...]
From Regional Patient Advocate Maria Ferron These last months have been hectic due to the organization that the 2022 HAEi Global Leadership Workshop entails, but we were all excited to meet face-to-face again after such a long period. Firstly, I would like to say that I have delivered the posters developed by HAEi requested [...]
From HAE Algeria For this second year of our existence and to celebrate hae day :-) 2022, HAE Algeria choose the casbah of Algiers to be its exclusive destination. This antic city, dating back to the 10th century, is a citadel overlooking the magnificent Algiers Bay and it has been classified by UNESCO as a [...]
From Regional Patient Advocate Maria Ferron This period has been really exciting and active for several reasons. Firstly, due to changes in the pandemic situation, we are allowed to go back to more face-to-face meetings, and it is nice to see again members of our HAE community. Also, after more than two years, the [...]
From Vice-President Salah Alioui, HAE Algeria HAE Algeria organized its first national HAE awareness day on 25 December 2021 at Lamaraz Hotel in Algiers. The day was under the patronage of the Minister of Health and the Minister of the Pharmaceutical Industry. The slogan “Speaking out, gives hope! Taking actions, saves lives!” was chosen for [...]
Over the past couple of months, work has progressed on the HAEi Virtual Workshop for the Middle East, North Africa, and Sub Sahara Africa. We have finalized the video recordings, and I have been working with the Regional Patient Advocate for Central Eastern Europe, Benelux, and the Middle East on the new website for [...]
This input is dated May 2021 >> View content in عربي وأمازيغية In brief Name for organization: HAE Algeria (National Association for Patients with Hereditary Angioedema) 80 members at 1 Jan 2021 Name of approved HAE treatments: Fresh frozen plasma Tranexamic acid Danazol Fun/interesting facts Largest country [...]
During March, the World Allergy Organization (WAO) and the Pan-Arab Society of Allergy, Asthma, and Immunology (PASAAI) organized the WAO Pan Arab Region Virtual Congress with several sessions, including one for HAE. Professor Douagui from Algeria invited me to join the HAE session named “HAE: Identifying & Managing a Potential Killer” that included these [...]
Initially, I am happy to inform you that the HAEi Emergency Room poster is now translated into Spanish, French and Arabic. On 5 December 2020, HAE Portugal (ADAH) held its annual meeting, this time in a virtual format. Around 45 participants took part, and Raquel Oliveira, the President of HAE Brazil (Abranghe) and I [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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