Kenya

News from Sub Sahara Africa

2023-11-10T12:17:48+01:00November 10, 2023|Africa, Benin, Eritrea, Ghana, HAEi News, Kenya, Mozambique, Namibia, Nigeria, Rwanda, Senegal, South Africa, Sudan, Swaziland, Tanzania, Uganda, Zambia, Zimbabwe|

From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]

News from Kenya

2023-07-12T15:41:03+02:00July 12, 2023|Africa, Kenya|

From President Patricia Karani, HAE Kenya A new HAE-knowledgeable physician – Dr. Anne Barasa – has joined our team of HAE doctors in Kenya. She is an immunopathologist based in the largest referral hospital in Nairobi, the Kenyatta National Hospital. She is also a lecturer at the Immunology unit under the Department of Human [...]

News from Sub Sahara Africa

2022-12-27T13:41:59+01:00December 27, 2022|Africa, HAEi News, Kenya, Namibia|

From Regional Patient Advocate Patricia Karani In Mozambique, new HAE patients have been identified and connected to a local doctor for better care, while in Namibia, a new patient family has been located, and all are currently doing well on locally available medications. Dr. Sadia Habiba is a new physician contact in Chad who [...]

News from Sub Sahara Africa

2022-07-06T15:38:19+02:00July 6, 2022|Africa, HAEi News, Kenya, Sudan, Zimbabwe|

From Regional Patient Advocate Patricia Karani Every year patients living with HAE celebrate life and hope on (and/or around) the annual HAE awareness day. This year HAE Kenya participated in the 1st Stakeholders Workshop for Rare Diseases in Kenya. KEMRI, Cambridge Africa, and Rare Disease International supported Rare Disorders Kenya and started a Call-to-Action [...]

News from Sub Sahara Africa

2022-04-04T10:12:40+02:00April 4, 2022|Africa, Eritrea, HAEi News, Kenya, Namibia|

From Regional Patient Advocate Patricia Karani In Namibia, a new HAE patient was diagnosed. We have been working with the physician to ensure that the patient receives the best possible care with the treatments presently available.  In Eritrea, a family with HAE has been found, and we are working to find a local physician [...]

10 year achievements – Kenya

2021-10-11T13:29:33+02:00July 7, 2021|10 year achievements, Africa, Kenya, Regions|

This input is dated May 2021 In brief Name for organization: HAE Kenya Foundation 2 members at 1 Jan 2021 There are no approved HAE medications. We however have fresh frozen plasma and androgens and tranexamic acid. Fun/interesting facts Beautiful warm weather Friendly people Awesome and delicious foods [...]

News from Sub Sahara Africa

2021-07-05T14:49:27+02:00July 5, 2021|Africa, HAEi News, Kenya, Rwanda, South Africa, Sudan, Tanzania, Zimbabwe|

I organized the first HAE doctors’ training in Ghana with the collaboration of the Rare Disease Ghana initiative. It was overwhelmingly attended by 40 doctors and clinicians alike. It was a good interactive session with Dr. Priya Bowry giving a lengthy and comprehensive presentation on the clinical approach to angioedema and HAE with good [...]

News from Kenya

2021-05-10T08:14:01+02:00April 6, 2021|Africa, Kenya|

In February, HAE Kenya President Patricia Karani appeared on NTV Kenya, the country’s number one urban station owned by East Africa’s largest media house the Nation Media Group. The program focused on plasma, critical for treating many serious health problems and how a pint of blood saves more than a life. You can see [...]

News from Sub Sahara Africa

2021-04-05T19:52:49+02:00April 5, 2021|Africa, HAEi News, Kenya, South Africa, Tanzania|

In Ghana, we have been able to start discussions on HAE with the Immunology Society of Ghana (ISG). We have also been able to liaise with Rare Disease Ghana for purposes of raising awareness amongst the general public. We have established new doctor contacts in Tanzania. We are in the process of holding further [...]

News from Sub-Sahara Africa

2020-12-21T12:53:37+01:00December 21, 2020|Africa, HAEi News, Kenya, Nigeria, South Africa, Sudan, Zimbabwe|

From Regional Patient Advocate Patricia Karani The COVID-19 situation in Sub-Saharan Africa is still the main focus of this region. However, I am taking advantage of any small step I can to move things forward where possible in countries like Zimbabwe, Kenya, Sudan, Nigeria, and Ghana. HAE International was able to raise awareness in [...]

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