News from Mediterranean, North Africa, Benelux and British Isles From Regional Patient Advocate Maria Ferron 2024 Highlights 2024 has been a remarkable year for the global HAE community. In my region, we saw many significant events and developments underscoring our collective commitment to raising awareness and fostering patient support. Highlights include: In March, [...]
From Regional Patient Advocate Maria Ferron The months leading up to the 2024 HAEi Global Leadership Workshop (GLW) have been nothing short of exhilarating. Coordinating the participation of representatives from various countries is one of the more challenging aspects of preparing for the GLW. However, seeing how effectively we can bring together diverse voices [...]
From Regional Patient Advocate Maria Ferron The second quarter of the year has been exciting. During this period, one of the main highlights has been assisting all Member Organizations in completing the registration process for the 2024 HAEi Global Leadership Workshop in October. All Member Organizations eagerly await this workshop, and they are excited [...]
From Regional Patient Advocate Maria Ferron The year started with the incredible news that I had gained 3 new countries as part of my Regional Patient Advocate (RPA) responsibilities: the Netherlands, Belgium, and Luxemburg, also known as Benelux. 2024 looks like a very exciting year for HAE. The countries in my region closed 2023 [...]
From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Regional Patient Advocate Maria Ferron These last months have been hectic due to the organization that the 2022 HAEi Global Leadership Workshop entails, but we were all excited to meet face-to-face again after such a long period. Firstly, I would like to say that I have delivered the posters developed by HAEi requested [...]
From Regional Patient Advocate Maria Ferron I am happy to announce that Lanadelumab was recently approved to be used in hospitals in Portugal. Also, from Portugal, the HAE team has been working on setting up their 2022 actions plans which among others include an HAE awareness campaign (supported with an HAEi poster), creating an [...]
Over the past couple of months, work has progressed on the HAEi Virtual Workshop for the Middle East, North Africa, and Sub Sahara Africa. We have finalized the video recordings, and I have been working with the Regional Patient Advocate for Central Eastern Europe, Benelux, and the Middle East on the new website for [...]
This input is dated May 2021 >> View content in اللغة العربية In brief Name for organization: HAE Libya 10 members at 1 Jan 2021 Name of approved HAE treatments: There are no approved treatments Fun/interesting facts The largest hot desert in the world. The most preserved [...]
During March, the World Allergy Organization (WAO) and the Pan-Arab Society of Allergy, Asthma, and Immunology (PASAAI) organized the WAO Pan Arab Region Virtual Congress with several sessions, including one for HAE. Professor Douagui from Algeria invited me to join the HAE session named “HAE: Identifying & Managing a Potential Killer” that included these [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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