From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]
From Regional Patient Advocate Patricia Karani In Mozambique, new HAE patients have been identified and connected to a local doctor for better care, while in Namibia, a new patient family has been located, and all are currently doing well on locally available medications. Dr. Sadia Habiba is a new physician contact in Chad who [...]
From Regional Patient Advocate Patricia Karani In Namibia, a new HAE patient was diagnosed. We have been working with the physician to ensure that the patient receives the best possible care with the treatments presently available. In Eritrea, a family with HAE has been found, and we are working to find a local physician [...]
From Regional Patient Advocate Patricia Karani: A patient recently contacted me seeking assistance in Namibia. The patient and two children have a diagnosis of HAE and I am now working with this patient to establish contact with doctors and medical officers in Namibia, with the intention to set up a patient group in the country. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
