From Regional Patient Advocate Patricia Karani The 2023 HAEi Regional Conference EMEA drew the attention of 9 doctors from different countries in the Sub Sahara Africa. The doctors got a chance to meet and discuss the challenges affecting them in the region and develop mitigation plans to ensure that they do not misdiagnose HAE [...]
A team of doctors dedicated to raising awareness in Zimbabwe have opened a Facebook page to share more information with the public and fellow health care professionals. They have invited patients and caregivers to join the support group and are sharing vital information on HAE. Have a look at www.facebook.com/HAE-Zimbabwe-106229328431928. Also, Dr. Careen – [...]
I organized the first HAE doctors’ training in Ghana with the collaboration of the Rare Disease Ghana initiative. It was overwhelmingly attended by 40 doctors and clinicians alike. It was a good interactive session with Dr. Priya Bowry giving a lengthy and comprehensive presentation on the clinical approach to angioedema and HAE with good [...]
In Ghana, we have been able to start discussions on HAE with the Immunology Society of Ghana (ISG). We have also been able to liaise with Rare Disease Ghana for purposes of raising awareness amongst the general public. We have established new doctor contacts in Tanzania. We are in the process of holding further [...]
From Regional Patient Advocate Patricia Karani: I have been reaching out to people in Tanzania to establish contacts who are willing to help raise awareness and set up an organization.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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