From HAE Tunisia The “ANAOH Tunisia” association officially began its activities in October 2022 with an executive office bringing together four patients and four doctors. The first general meeting was held in March 2023 in the presence of the executive office and 42 patients. A board meeting was held in November to plan actions [...]
From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From RPA Maria Ferron The 1st General Assembly of the HAE Tunisia (ANAOH) was held on Sunday 12 March 2023. Because the greater number of HAE patients are located in the north of the country, the city Beja was chosen for the meeting. Thirty-six patients attended the meeting, and they are now planning another patient [...]
From Regional Patient Advocate Maria Ferron I have been advising all the member organizations in my region about the new Advocacy Academy courses developed by HAEi. This is an excellent opportunity for national organizations to take advantage of this wonderful tool to learn how to run an organization and advocate for patients. Please don’t [...]
Over the past couple of months, work has progressed on the HAEi Virtual Workshop for the Middle East, North Africa, and Sub Sahara Africa. We have finalized the video recordings, and I have been working with the Regional Patient Advocate for Central Eastern Europe, Benelux, and the Middle East on the new website for [...]
During March, the World Allergy Organization (WAO) and the Pan-Arab Society of Allergy, Asthma, and Immunology (PASAAI) organized the WAO Pan Arab Region Virtual Congress with several sessions, including one for HAE. Professor Douagui from Algeria invited me to join the HAE session named “HAE: Identifying & Managing a Potential Killer” that included these [...]
By Maria Ferron, Regional Patient Advocate Mediterranean & Maghreb Countries I was very worried that the 2020 HAEi Regional Workshop Maghreb-North Africa was bound for disaster after experiencing many problems and difficulties in the organization. Then at the last minute, I was advised that Dr. Laurence Bouillet and Dr. Teresa Caballero would not be able [...]
From Regional Patient Advocate Maria Ferron During the last few months, my focus has been on the organizing of the 2020 HAEi Regional Workshop North Africa in Algeria, on 6-8 March. This meeting brought together patients, families, and physicians from Libya, Tunisia, Mauritania, Morocco, and Algeria for the first time. The agenda included a scientific [...]
HAE International welcomes country no. 78 to the global HAE family: Tunisia. Please see https://haei.org/location/hae-tunisia.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
