From Regional Patient Advocate Patricia Karani Every year patients living with HAE celebrate life and hope on (and/or around) the annual HAE awareness day. This year HAE Kenya participated in the 1st Stakeholders Workshop for Rare Diseases in Kenya. KEMRI, Cambridge Africa, and Rare Disease International supported Rare Disorders Kenya and started a Call-to-Action [...]
A team of doctors dedicated to raising awareness in Zimbabwe have opened a Facebook page to share more information with the public and fellow health care professionals. They have invited patients and caregivers to join the support group and are sharing vital information on HAE. Have a look at www.facebook.com/HAE-Zimbabwe-106229328431928. Also, Dr. Careen – [...]
I organized the first HAE doctors’ training in Ghana with the collaboration of the Rare Disease Ghana initiative. It was overwhelmingly attended by 40 doctors and clinicians alike. It was a good interactive session with Dr. Priya Bowry giving a lengthy and comprehensive presentation on the clinical approach to angioedema and HAE with good [...]
From Regional Patient Advocate Patricia Karani The COVID-19 situation in Sub-Saharan Africa is still the main focus of this region. However, I am taking advantage of any small step I can to move things forward where possible in countries like Zimbabwe, Kenya, Sudan, Nigeria, and Ghana. HAE International was able to raise awareness in [...]
From Regional Patient Advocate Patricia Karani I have established contact with a doctor in Harare, Zimbabwe, who has an interest in HAE.
From Regional Patient Advocate Patricia Karani I am involved in an exciting HAE International pilot project in Rwanda with a dedicated doctor to locate patients with HAE who have been misdiagnosed. I have established contact with a doctor in Harare, Zimbabwe, who has an interest in HAE. During February, awareness campaigns were held in Kenya. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
