News from Oceania and South Africa From Regional Patient Advocate Fiona Wardmann 2024 Highlights I’m an RPA for countries in the APAC region and South Africa, and seeing the growth within individual Member Organizations (MO) has been remarkable. They support more patients than ever to learn about HAE, access clinical trials, and access [...]
From Regional Patient Advocate Fiona Wardman To enhance support across the Asia-Pacific (APAC) region, I have transitioned some of my responsibilities to my colleagues, Yong Hao and Fanny, the RPA leads for other APAC region countries. I focus on supporting Australia, New Zealand, South Africa, and other Oceania countries, ensuring they continue receiving the guidance [...]
The last couple of months have been a vibrant period for HAE Australasia, marked by growth, education, and community engagement. Here are some of the key highlights from this time. Membership Growth HAE Australasia has seen encouraging growth in its membership, welcoming 10 new members over the past two months. This increase reflects the [...]
From Zoe Steiner, HAE Australasia Good day from Australia I’m excited to introduce myself to the exciting new role I have taken in the team and share some updates on our ongoing initiatives. My name is Zoe, and I joined the HAE Australasia team in April of this year as the Operations Coordinator. I [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Fiona Wardman, HAE Australasia HAE Australasia has released a series of videos highlighting the impact of access to prophylaxis medication for Hereditary Angioedema (HAE) patients. The videos compare the current access in Australia, which is not ideal but better than New Zealand, where access is not yet available. Featuring young people with HAE [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From Director Fiona Wardman, HAE Australasia HAE Australasia has a new CEO! Lisa Foster is an inclusive and authentic leader with extensive experience across Health, Disability, Mental Health, and Community Support Sectors. Lisa was the Chief Executive for Rare Disorders New Zealand and has a background in biomedical science. As a veteran of advocating [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Director Fiona Wardman, HAE Australasia The first significant project for HAE Australasia has closed off this year is the HAE pharmaco and socioeconomic/quality of life survey. We look forward to receiving the data results, which will be used to advocate our ministries of health and pharmaceutical funding bodies about the importance of HAE [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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