From Zoe Steiner, HAE Australasia Good day from Australia I’m excited to introduce myself to the exciting new role I have taken in the team and share some updates on our ongoing initiatives. My name is Zoe, and I joined the HAE Australasia team in April of this year as the Operations Coordinator. I [...]
From Regional Patient Advocate Fiona Wardman In May, I engaged in various activities across my Asia Pacific region to advance HAE initiatives: I worked closely with the HAEi conference team to ensure the Afghanistan patient lead could register for the 2024 HAEi Global Leadership Workshop with a travel grant and coupon code In Bangladesh, [...]
From Fiona Wardman, HAE Australasia HAE Australasia has released a series of videos highlighting the impact of access to prophylaxis medication for Hereditary Angioedema (HAE) patients. The videos compare the current access in Australia, which is not ideal but better than New Zealand, where access is not yet available. Featuring young people with HAE [...]
From Regional Patient Advocate Fiona Wardman During the last few months, I have been working closely with South Africa and India. They are working towards impactful patient meetings aimed at bolstering support and awareness for HAE patients. These gatherings will serve as crucial platforms for patients, caregivers, and healthcare professionals to come together, share [...]
From Director Fiona Wardman, HAE Australasia HAE Australasia has a new CEO! Lisa Foster is an inclusive and authentic leader with extensive experience across Health, Disability, Mental Health, and Community Support Sectors. Lisa was the Chief Executive for Rare Disorders New Zealand and has a background in biomedical science. As a veteran of advocating [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Director Fiona Wardman, HAE Australasia The first significant project for HAE Australasia has closed off this year is the HAE pharmaco and socioeconomic/quality of life survey. We look forward to receiving the data results, which will be used to advocate our ministries of health and pharmaceutical funding bodies about the importance of HAE [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia received ethics approval to run the HAE pharmaco and socioeconomic/quality of life survey. This critical survey is for patients and their family members in Australia and New Zealand. We encourage all our members to take the time to answer the questions to ensure their journey with [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
