News from Australia and New Zealand

2022-01-13T09:28:59+01:00January 13, 2022|Australia, Australia/Oceania, New Zealand|

From CEO Fiona Wardman, HAE Australasia: Patients in Australia are thankful for our Health Minister’s decision to sign off on the recommendation to fund Takhzyro (lanadelumab). As of 1 December 2021, more patients have access to this treatment, closing the gap of access for prophylaxis medications for many of our patients. Our patients in [...]

News from Asia Pacific

2021-12-30T11:02:01+01:00December 30, 2021|Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, Hong Kong, India, Japan, South Africa, South Asia, South Korea, Taiwan|

From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]

News from Australia and New Zealand

2021-11-03T14:05:27+01:00October 27, 2021|Australia, Australia/Oceania, New Zealand|

From CEO Fiona Wardman, HAE Australasia: HAE Australasia is excited that the Pharmaceuticals Benefit Advisory Committee in Australia has recommended lanadelumab be listed on the pharmaceuticals benefits scheme (PBS), making this treatment available to patients in Australia. We look forward to this treatment being officially listed towards the end of the year. HAE Australasia [...]

News from Asia Pacific

2021-10-06T09:40:59+02:00October 6, 2021|Australia, Australia/Oceania, China, East & Southeast Asia, HAEi News, Hong Kong, India, New Zealand, South Asia, Sri Lanka|

Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]

News from Australia and New Zealand

2021-07-05T15:31:42+02:00July 5, 2021|Australia, Australia/Oceania, New Zealand|

From CEO Fiona Wardman, HAE Australasia: HAE Australasia and its members (in Australia) welcomed the news that subcutaneous C1 is now indicated for children aged eight and older. There have been quite a few questions from HAE patients around receiving the COVID-19 vaccinations. HAE Australasia has made available the information from HAEi on this [...]

News from Asia Pacific

2021-07-05T14:49:26+02:00July 5, 2021|Australia, Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, India, Japan, New Zealand, Pakistan, Singapore, South Asia, South Korea|

Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]

10 year achievements – New Zealand

2021-10-11T13:30:46+02:00June 14, 2021|10 year achievements, Australia/Oceania, New Zealand, Regions|

This input is dated May 2021 In brief Name for organization: HAE Australasia (Australia and New Zealand) Patient group started in 2010 – now HAE Australasia (2013) 38 members at 1 Jan 2021 Name of approved HAE treatments: Icatibant – for acute attacks (ages 2 and above) Fun/interesting [...]

10 year achievements – Australia

2021-10-11T13:30:47+02:00June 9, 2021|10 year achievements, Australia, Australia/Oceania, Regions|

This input is dated May 2021 In brief Name for organization: HAE Australasia (Australia and New Zealand) HAE Australia (formalised) patient group started in 2011 – now HAE Australasia (2013) 268 members at 1 Jan 2021 Name of approved HAE treatments: Berinert IV & Subcutaneous – prophylaxis (8 attacks or [...]

News from Australia and New Zealand

2021-05-10T08:42:03+02:00April 6, 2021|Australia, Australia/Oceania, New Zealand|

From CEO Fiona Wardman, HAE Australasia HAE Australasia held a strategy meeting to talk about current and new projects for the year ahead. We have some exciting and useful ideas for projects and initiatives, and we look forward to bringing them to fruition. HAE Australasia is very proud of the videos and downloadable documents [...]

News from Asia Pacific

2021-04-05T19:56:37+02:00April 5, 2021|Australia/Oceania, China, East & Southeast Asia, HAEi News, India, Japan, Singapore, South Asia, South Korea, Taiwan|

During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]

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