Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia and its members (in Australia) welcomed the news that subcutaneous C1 is now indicated for children aged eight and older. There have been quite a few questions from HAE patients around receiving the COVID-19 vaccinations. HAE Australasia has made available the information from HAEi on this [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 In brief Name for organization: HAE Australasia (Australia and New Zealand) HAE Australia (formalised) patient group started in 2011 – now HAE Australasia (2013) 268 members at 1 Jan 2021 Name of approved HAE treatments: Berinert IV & Subcutaneous – prophylaxis (8 attacks or [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia held a strategy meeting to talk about current and new projects for the year ahead. We have some exciting and useful ideas for projects and initiatives, and we look forward to bringing them to fruition. HAE Australasia is very proud of the videos and downloadable documents [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia held a webinar for patients and carers in New Zealand with Dr. Karen Lindsay, Dr. Hilary Longhurst for physicians and research updates. The webinar was recorded and has been uploaded to our YouTube channel: https://youtu.be/DsdKUdTDHJQ. One of our younger HAE patients from Perth, Western Australia, has [...]
From Director Fiona Wardman, HAE Australasia: HAE Australasia recorded a Q&A video with Prof. Connie Katelaris in June. The questions and answers related to COVID-19, existing and new treatment options, clinical trials, and a new support service was announced for patients in Australia and New Zealand. The video has been uploaded on to our [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia Youth Group is up and running, and the group facilitator Jess has done a great job in connecting some of our youth from Australia and New Zealand. We would encourage more youth to join the group as we have some projects and a competition for them [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia held its strategy meeting during January 2020. This meeting brings together the HAE Australasia Board of Directors to discuss the projects and initiatives for the coming year. The Board is excited about the new projects the organization will be working on to bring more HAE education and [...]
From CEO Fiona Wardman, HAE Australasia: HAE Australasia has submitted the ethics application to join the Global Registry in Australia. We hope to have a positive answer very soon so we can start rolling out the project around the country. Once again this year, we attended the Australasian Society of Clinical Immunology & Allergy (ASCIA) Conference, where we had the [...]
