From Director Fiona Wardman, HAE Australasia HAE Australasia has a new CEO! Lisa Foster is an inclusive and authentic leader with extensive experience across Health, Disability, Mental Health, and Community Support Sectors. Lisa was the Chief Executive for Rare Disorders New Zealand and has a background in biomedical science. As a veteran of advocating [...]
From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Director Fiona Wardman, HAE Australasia The first significant project for HAE Australasia has closed off this year is the HAE pharmaco and socioeconomic/quality of life survey. We look forward to receiving the data results, which will be used to advocate our ministries of health and pharmaceutical funding bodies about the importance of HAE [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia received ethics approval to run the HAE pharmaco and socioeconomic/quality of life survey. This critical survey is for patients and their family members in Australia and New Zealand. We encourage all our members to take the time to answer the questions to ensure their journey with [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From CEO Fiona Wardman, HAE Australasia HAE Australasia is proud of the collaboration with HAEi on the Elizabeth Macarthur Virtual Angioedema Centre (EMVAC). The idea of a virtual center came from Professor Connie Katelaris to overcome the challenge of patients being unable to access specialist HAE medical advice and support due to the vast [...]
From HAE Australasia HAE Australasia has added three new ‘Living Well with HAE’ videos to the website library. The latest videos cover essential topics such as ‘HAE Overview & Treatment’ with Prof. Connie Katelaris, ‘HAE & Gynaecology’ with Dr. Andrew Pesce, and ‘The Role of Genetic Counselling’ with Rebecca McIntosh. HAE Australasia has complemented [...]
HAEi is excited to announce that its proprietary online, cloud-based, virtual center platform is now live! According to HAEi Executive Vice President and Chief Operating Officer, Henrik Balle Boysen, “The Elizabeth Macarthur Virtual Angioedema Centre in Sydney, Australia is the first center to implement the HAEi Virtual Center technology, and we are working with [...]
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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