Australia

From CEO Fiona Wardman HAE Australasia has met with the Pharmaceutical Benefits Advisory Committee (PBAC) to provide consumer comments on the funding of one of the new prophylaxis therapies. The presentation to the committee and comments were well received by the panel; however, unfortunately, the government at this time rejected the results of the submission. The panel have recognized that there is [...]

From HAE Australasia CEO Fiona Wardman: During April HAE Australasia held their 2019 HAE Patient & Carers Conference on the Gold Coast, Queensland. This was the first time the conference was held over two days, and also the first time we had separate youngsters sessions. Day 1 opened with an amazing and inspiring keynote speech from Gidon Goodman, who is [...]