The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with resources.
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the Association of Rare Diseases in Guatemala.
Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.
El Salvador has three HAE knowledgeable physicians – please see the HAE International map at https://haei.org/hae-member-countries/el-salvador. El Salvador now has a website under the HAEi wings - please see https://elsalvador.haei.org.
From Regional Patient Advocate Javier Santana: As part of the events of hae day :-) 2019, Dr Olga M. Barrera (second from left) made an exhibition “The Multiple Faces of HAE” at the San Fernando Hospital in Panama to educate and raise awareness among the hospital’s medical community. Dr Barrera attends to 20 patients with HAE in Panama City. During [...]
In the second half of March, HAEA Puerto Rico held its Patient Summit 2019 in San Juan. The main speakers were Professor Sandra Christiansen from the US HAEA Angioedema Center at UCSD, Director Bruce Zuraw from the US HAEA Angioedema Center at UCSD, MD Rafael Zaragoza who is President of the Puerto Rican Association of [...]
HAEi Regional Patient Advocate Javier Santana has helped country no. 72 to join the global HAE family. HAEi welcomes Guatemala represented by Mrs Samantha Alvarado who can be reached at email@example.com.
From Regional Patient Advocate Javier Santana: Together with a doctor from Puerto Rico, I am planning on visiting doctors in the Dominican Republic to identify HAE patients and help in the diagnosis and treatment process.
From Regional Patient Advocate Javier Santana: I have been in contact with a Cuban who is both a doctor and an HAE patient. He already knows of some other HAE patients in the country – and he is willing to lead a national organization in Cuba, identify more patients, educate about the disease, and identify [...]