Central America and Caribbean

News from Puerto Rico

2024-01-29T12:00:17+01:00January 29, 2024|Central America and Caribbean, Puerto Rico|

From HAE Puerto Rico The Immunology and Allergy Association of Puerto Rico had an annual congress where the HAE topic was part of the agenda. Many doctors made some presentations and talked about the efforts, new treatments, and studies about HAE. Prof. Marc Riedl, Clinical Director, US HAEA Angioedema Center in San Diego, California, [...]

News from Panama

2024-01-29T11:47:59+01:00January 29, 2024|Central America and Caribbean, Panama|

From HAE Panama During the celebration of the Central American and National Congress of Otorhinolaryngology, held in Panama, 16-18 November 2023, the topic of HAE was addressed by Dr. Olga M. Barrera, medical advisor of the Panamanian Association of Patients with HAE, which motivated a lot of interest among those attending that specialty. [...]

News from Central America and Caribbean

2023-11-10T12:12:48+01:00November 10, 2023|Argentina, Bolivia, Brazil, Central America and Caribbean, Chile, Colombia, Costa Rica, Cuba, Dominican Republic, Ecuador, El Salvador, Guatemala, HAEi News, Honduras, Nicaragua, Panama, Paraguay, Peru, Puerto Rico, South America, Trinidad, Uruguay, Venezuela, Virgin Islands|

From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]

News from Panama

2023-07-12T16:31:43+02:00July 12, 2023|Central America and Caribbean, Panama|

From Regional Patient Advocate Javier Santana Since 2022 the group of patients and HAE specialist doctors have held multiple meetings with government officials to discuss the shortage of HAE medicines. Despite the constant promises to resolve the situation of drug shortages, the Panamanian government still evades its responsibility to provide patients with HAE with [...]

News from Costa Rica

2023-07-12T16:00:20+02:00July 12, 2023|Costa Rica|

From RPA Javier Santana The situation regarding HAE medications continues to develop drop by drop. After a meeting held last year between the group of patients, rare disease patient associations from Costa Rica, the Minister of Health, the Medical Directors of the country’s main hospital, Government representatives, and myself, the entry of Berinert and icatibant [...]

News from Central America and Caribbean

2023-06-16T09:49:12+02:00June 19, 2023|Central America and Caribbean, Costa Rica, HAEi News, Panama, South America|

From Regional Patient Advocate Javier Santana During recent months, many of the patient groups in the Central America and Caribbean region have worked hard to gain access to HAE drugs in their countries. Not least, patients from Costa Rica and Panama have held multiple meetings with government representatives seeking to finally achieve the acquisition [...]

News from Central America and Caribbean

2023-01-02T14:32:51+01:00December 27, 2022|Central America and Caribbean, Costa Rica, Cuba, El Salvador, HAEi News, South America|

From Regional Patient Advocate Javier Santana Much of my time has been concentrated on Costa Rica, where a young mother with HAE has been hospitalized several times due to severe crises. Unfortunately, the country’s main hospital has refused to purchase and provide one of the two treatments already authorized in Costa Rica to counteract [...]

News from Puerto Rico

2022-11-25T11:22:37+01:00November 25, 2022|Central America and Caribbean, Puerto Rico|

HAE Puerto Rico has held its annual conference where HAE specialist doctors had the opportunity to talk about topics such as new treatments, research, and COVID-19 vs. HAE. The main speaker and special guest was Dr. Marc Riedl from the US HAEA Angioedema Center. Among the other speakers were Dr. Anardi Agosto, President of the [...]

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