Central America and Caribbean

News from El Salvador

2019-10-12T16:11:08+02:00October 12, 2019|El Salvador|

The website for the national group is now live, and the group wishes to use this for educational campaigns. A nurse in El Salvador is creating awareness of HAE by visiting allergy clinics and providing them with resources.

News from Guatemala

2019-10-12T16:09:54+02:00October 12, 2019|Guatemala|

HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the Association of Rare Diseases in Guatemala.

News from Panama

2019-10-12T16:08:33+02:00October 12, 2019|Panama|

The HAE patient group in Panama is continuing the efforts to advocate for the government to consider granting access to HAE treatments.

News from Costa Rica

2019-10-11T23:00:01+02:00October 11, 2019|Costa Rica|

Costa Rica has also opened a website under the HAEi umbrella - please visit https://costarica.haei.org. An HAE knowledgeable hospital has been added to the map of Costa Rica - please see https://haei.org/location/hospital-san-jose-costa-rica.

News from El Salvador

2019-10-11T21:10:30+02:00October 11, 2019|El Salvador|

El Salvador has three HAE knowledgeable physicians – please see the HAE International map at https://haei.org/hae-member-countries/el-salvador. El Salvador now has a website under the HAEi wings - please see https://elsalvador.haei.org.

News from Panama

2019-07-16T14:51:51+02:00July 16, 2019|Panama|

From Regional Patient Advocate Javier Santana: As part of the events of hae day :-) 2019, Dr Olga M. Barrera (second from left) made an exhibition “The Multiple Faces of HAE” at the San Fernando Hospital in Panama to educate and raise awareness among the hospital’s medical community. Dr Barrera attends to 20 patients with HAE in Panama City. During [...]

News from Puerto Rico

2019-07-16T18:27:03+02:00April 9, 2019|Puerto Rico|

In the second half of March, HAEA Puerto Rico held its Patient Summit 2019 in San Juan. The main speakers were Professor Sandra Christiansen from the US HAEA Angioedema Center at UCSD, Director Bruce Zuraw from the US HAEA Angioedema Center at UCSD, MD Rafael Zaragoza who is President of the Puerto Rican Association of [...]

News from Guatemala

2019-07-16T18:23:07+02:00April 9, 2019|Guatemala|

HAEi Regional Patient Advocate Javier Santana has helped country no. 72 to join the global HAE family. HAEi welcomes Guatemala represented by Mrs Samantha Alvarado who can be reached at samata.saga@gmail.com.

News from Dominican Republic

2019-07-16T18:01:01+02:00April 9, 2019|Dominican Republic|

From Regional Patient Advocate Javier Santana: Together with a doctor from Puerto Rico, I am planning on visiting doctors in the Dominican Republic to identify HAE patients and help in the diagnosis and treatment process.

News from Cuba

2019-07-16T17:55:16+02:00April 9, 2019|Cuba|

From Regional Patient Advocate Javier Santana: I have been in contact with a Cuban who is both a doctor and an HAE patient. He already knows of some other HAE patients in the country – and he is willing to lead a national organization in Cuba, identify more patients, educate about the disease, and identify [...]