From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
From Regional Patient Advocate Javier Santana I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. A European citizen will be temporarily relocating to El Salvador to participate [...]
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the Association of Rare Diseases in Guatemala.
HAEi Regional Patient Advocate Javier Santana has helped country no. 72 to join the global HAE family. HAEi welcomes Guatemala represented by Mrs Samantha Alvarado who can be reached at email@example.com.