From Regional Patient Advocate Javier Santana In Central America and the Caribbean, every day, there are more doctors interested in learning about Hereditary Angioedema (HAE) and how to help patients in their respective countries. New doctors in El Salvador and Costa Rica have been in communication with HAEi and me to find a way [...]
For several months, HAE patients in Costa Rica have conducted interviews with the media to denounce the situation they are experiencing as the Government has not heard their claims. Several patients have been hospitalized with severe HAE attacks, one has been intubated to save his life, and according to HAE Costa Rica, three patients [...]
This input is dated May 2021 >> View content in Español In brief Name for organization: HAE Guatemala 2 members at 1 Jan 2021 Name of approved HAE treatments: None Fun/interesting facts Culture. Gastronomy & food. Tourism. What positive changes have happened for people with [...]
The biannual HAE Global Conference has been an excellent opportunity for people with HAE to meet, exchange experiences, and learn from each other over the years. Following the 2018 HAE Global Conference in Vienna, Austria, organizing a workshop for fellow Latin American patients was a must. Originally the plan was to hold the first-ever [...]
From Regional Patient Advocate Javier Santana: I am continuing to provide support to the member organizations and HAE patients in Guatemala, Panama, El Salvador, and the Dominican Republic through HAE international programs and services, and by helping to identify and refer more HAE patients.
From Regional Patient Advocate Javier Santana I have held discussions with a pharma company from Costa Rica who wishes to introduce a generic HAE treatment to Costa Rica, Guatemala, and Peru. The company is currently engaged in discussions with doctors in these countries. A European citizen will be temporarily relocating to El Salvador to participate [...]
HAE materials and resources have been provided in Spanish by the Regional Patient Advocate Javier Santana to the patient group in Guatemala. The group is working towards being a registered organization and becoming a member of the Association of Rare Diseases in Guatemala.
HAEi Regional Patient Advocate Javier Santana has helped country no. 72 to join the global HAE family. HAEi welcomes Guatemala represented by Mrs Samantha Alvarado who can be reached at moc.liamg@agas.atamas.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
