2019 HAEi Regional Workshop Central Eastern Europe

2020-01-03T13:38:23+02:00December 30, 2019|Armenia, Belarus, Belgium, Czech Republic, Estonia, Georgia, Hungary, Kasakhstan, Lithuania, Poland, Russia, Slovakia, The Netherlands, Ukraine|

By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]

News from Russia

2019-10-11T21:08:48+02:00October 11, 2019|Russia|

From Chairman Elena Bezbozhnaya On 19-20 June 2019, HAE Russia held the International Scientific and Practical Conference “Strategy and tactics for treating patients with HAE. Life without fear”. Organized for the third time, this year the conference received the status of a major international event. The conference gathered highly experienced doctors and members of patient organizations from Belarus, Hungary, Kazakhstan, and Poland [...]

News from Russia

2019-07-16T16:17:19+02:00July 16, 2019|Russia|

From Chairman Elena Bezbozhnaya, HAE Russia (SPHA OPHAE): On hae day :-) 2019, the Interregional Public Organization “Society of Patients with HAE” (SPHA OPHAE) celebrated its third anniversary. Today the organization includes more than 150 people from 40 regions of the Russian Federation, providing administrative and legal support for patients and holding regular specialized scientific conferences, promotion events, seminars and webinars. [...]


2020-03-06T09:36:53+02:00February 14, 2019|

HAE RUSSIA Межрегиональная общественная организация Общество пациентов с Наследственным Ангионевротическим Отеком (МОО ОПНАО) Russia ·  Central Asia ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Russia. HAE online in [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-07-09T13:45:32+02:00January 14, 2019|Belarus, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]