Russia

News from Russia

2019-07-16T16:17:19+02:00July 16, 2019|Russia|

From Chairman Elena Bezbozhnaya, HAE Russia (SPHA OPHAE): On hae day :-) 2019, the Interregional Public Organization “Society of Patients with HAE” (SPHA OPHAE) celebrated its third anniversary. Today the organization includes more than 150 people from 40 regions of the Russian Federation, providing administrative and legal support for patients and holding regular specialized scientific conferences, promotion events, seminars and webinars. [...]

Russia

2019-03-08T09:04:03+02:00February 14, 2019|

HAE RUSSIA Межрегиональная общественная организация Общество пациентов с Наследственным Ангионевротическим Отеком (МОО ОПНАО) Russia ·  Central Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Russia. HAE online in Russia [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-07-09T13:45:32+02:00January 14, 2019|Belarus, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]