News from Singapore
From HAE Singapore: The first patient meeting has taken place in Singapore. Patients have connected and there are plans in place to advocate as a group and get things moving here.
News from Japan
From President Beverley Yamamoto, HAE Japan We have seen great improvement in the treatment environment in Japan over the last two years, and in September the third long term prophylactic treatment was approved by the PMDA. Since last reporting to Global Perspectives, we have also seen the indications for use of Icatibant expanded to [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman For the last few months, I have focused on catching up with the Member Organizations in the Asia Pacific region and South Africa via virtual means. It seems that everyone is looking forward to once again being able to meet face-to-face. The latest tools and resources have [...]
News from Japan
From President Beverley Yamamoto, HAE Japan The non-profit organization Discovery Consortium has been established in Japan to try and lift the diagnosis rate for HAE up to the kind of levels seen in North America and Europe. At the moment we estimate that only 20 % of all Japanese patients have been diagnosed. The [...]
News from Asia Pacific
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
News from Asia Pacific
Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]
News from Thailand
From National contact Suchitta Kengtanyagarn, HAE Thailand: We had our first virtual meeting on hae day :-) 2021. For the meeting, we had financing support by Takeda Thailand and the volunteer speakers were Dr. Gun and Dr. Chamas as well as the President of Hemophilia Thailand to share their experience about making a patient [...]
