East & Southeast Asia

News from Taiwan

2024-01-29T12:42:07+01:00January 29, 2024|East & Southeast Asia, Taiwan, Uncategorized|

From Chen Jyun-Ting and Lim Yong Hao One of the biggest highlights in Taiwan in 2023 is the boost in the number of HAE-knowledgeable doctors and healthcare professionals. This happened because of training workshops organized and conducted by Dr. Shyur and colleagues, with the support of CSL Behring. The workshops were conducted between May [...]

News from South Korea

2024-01-29T12:38:31+01:00January 29, 2024|East & Southeast Asia, South Korea|

From Soojin Min, HAE Korea Start of Welfare for the Weak! National Assembly Debate to Improve the Quality of Life of Patients with Rare Diseases in Medical Blind Spots: On Tuesday, 12 September, The Korean Society of Genetic Angioma held a policy discussion at the National Assembly Hall in Korea to find ways to [...]

News from Singapore

2024-01-29T12:08:20+01:00January 29, 2024|East & Southeast Asia, Singapore|

From Lim Yong Hao, HAE Singapore HAE Singapore’s membership has recently broken into double digits with 11 members, consisting of patients and caregivers. We are slowly growing and hope to reach and engage the other HAE patients and their caregivers in Singapore. There are also more physicians in Singapore who are taking care of [...]

News from China

2024-01-17T10:35:59+01:00January 17, 2024|China, East & Southeast Asia|

From HAE China In 2023, we promoted through official accounts and celebrities on multiple well-known social media platforms while organizing various offline activities to expand our organizational influence and continuously achieve good results. The organization currently has 267 members and has established volunteer service organizations in 25 provinces and cities in the Chinese Mainland. [...]

News from Asia Pacific and South Africa

2023-11-14T16:01:31+01:00November 10, 2023|Afghanistan, Australia, Australia/Oceania, Bangladesh, East & Southeast Asia, HAEi News, India, Japan, New Zealand, Pakistan, South Asia, South Korea|

From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]

News from Eastern Asia

2023-11-10T12:44:12+01:00November 10, 2023|China, East & Southeast Asia, HAEi News, Hong Kong, Indonesia, Malaysia, Singapore, South Asia, Sri Lanka, Taiwan|

From Regional Patient Advocate Lim Yong Hao I began my official Regional Patient Advocate (RPA) journey in June of this year, taking on the responsibility of supporting the countries and Member Organizations in the Eastern Asia region, including China, Taiwan, Hong Kong, Singapore, Malaysia, Indonesia, and Sri Lanka, from Fiona. It was a daunting [...]

News from South Korea

2023-07-12T16:29:28+02:00July 12, 2023|East & Southeast Asia, South Korea|

From Chairman Soojin Min, HAE Korea I congratulate HAEday2023 #active4HAE on an impressive achievement in Korea! We are pleased that the number of steps for hae day :-) reached 647,966, with over 280 people participating. By coming together and participating in this event, we have not only contributed to our own welfare but also [...]

News from Thailand

2023-07-12T16:23:07+02:00July 12, 2023|East & Southeast Asia, Thailand|

From HAE Thailand For hae day :-) 2023, Siriraj Urticaria and Angioedema Center organized and disseminated a poster and video on the topic “Hereditary angioedema (HAE) knowledge for physicians”. These informative materials aimed to educate physicians about essential aspects of HAE, including its signs and symptoms, diagnostic investigations, and treatment. The distribution of these [...]

News from Asia Pacific

2023-06-16T10:11:08+02:00June 19, 2023|Australia, Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, Hong Kong, India, Indonesia, Japan, Malaysia, Nepal, New Zealand, Pakistan, Philippines, Singapore, South Asia, South Korea, Taiwan, Thailand, Vietnam|

From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]

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