News from Asia Pacific

2021-12-30T11:02:01+01:00December 30, 2021|Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, Hong Kong, India, Japan, South Africa, South Asia, South Korea, Taiwan|

From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]

News from Asia Pacific

2021-10-06T09:40:59+02:00October 6, 2021|Australia, Australia/Oceania, China, East & Southeast Asia, HAEi News, Hong Kong, India, New Zealand, South Asia, Sri Lanka|

Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]

News from Asia Pacific

2021-07-05T14:49:26+02:00July 5, 2021|Australia, Australia/Oceania, Bangladesh, China, East & Southeast Asia, HAEi News, India, Japan, New Zealand, Pakistan, Singapore, South Asia, South Korea|

Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]

10 year achievements – China

2021-10-11T13:29:34+02:00June 14, 2021|10 year achievements, China, East & Southeast Asia, Regions|

This input is dated May 2021 >> View content in 中文 In brief Name for organization: Swift Vascular Edema Care Center 160 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Fun/interesting facts In China, people usually greet each other by asking, “Have you eaten yet?” instead [...]

News from Asia Pacific

2021-04-05T19:56:37+02:00April 5, 2021|Australia/Oceania, China, East & Southeast Asia, HAEi News, India, Japan, Singapore, South Asia, South Korea, Taiwan|

During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]

News from China

2020-12-28T12:13:30+01:00December 28, 2020|China, East & Southeast Asia|

From HAE China Winner of seed fund: April 2020, the first public benefit innovation competition for rare diseases was officially launched. Through online courses, an offline entrepreneurship camp and project supervision, rare disease organizations are helped to improve their overall operation ability, incubate high-quality, innovative projects and provide financial support. The bottom line is [...]

News from Asia Pacific

2020-12-21T12:59:43+01:00December 21, 2020|Bangladesh, China, East & Southeast Asia, HAEi News, India, Indonesia, Japan, South Asia, South Korea|

The past few months have been busy in the Asia Pacific region with some exciting projects going on with the member organizations. I always enjoy catching up with each of the patient leads from all the member organizations to discuss plans and how to create awareness and education opportunities and build their capacity. I [...]


2022-01-07T15:20:44+01:00February 11, 2019|

HAE CHINA 雨燕血管水肿关爱中心 China  ·  East & Southeast Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in China. HAE online in China Visit our website [...]

News from China

2019-07-16T18:40:44+02:00December 20, 2018|China|

HAEi has recently registered the first HAE knowledgeable physician and hospital in China: Prof. Yuxiang Zhi, Peking Union Medical College Hospital in Beijing. The professor can be contacted via telephone 0086 13426303007 and email moc.621@ihz_gnaixuy.

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