News from Asia Pacific

2021-10-06T09:40:59+02:00October 6, 2021|Australia, Australia/Oceania, China, East & Southeast Asia, HAEi News, Hong Kong, India, New Zealand, South Asia, Sri Lanka|

Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]

10 year achievements – Hong Kong

2021-10-11T13:29:34+02:00June 14, 2021|10 year achievements, East & Southeast Asia, Hong Kong, Regions|

This input is dated May 2021 >> View content in 廣東話 In brief Name for organization: The Hong Kong HAE Patient Group Limited 40 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Fun/interesting facts Foodie central Scenic hikes A city in China with its own Olympic [...]

News from Asia Pacific

2020-10-05T11:39:54+02:00October 5, 2020|East & Southeast Asia, HAEi News, Hong Kong, India, Singapore, South Asia, South Korea, Taiwan|

The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]

News from Hong Kong

2020-10-22T10:46:07+02:00October 5, 2020|East & Southeast Asia, Hong Kong|

In July, HAE HK introduced a bilingual emergency card tailored for Hong Kong residents’ different language needs. With the introduction of this emergency card, Hong Kong medical staff is now in a better position to understand this rare illness so that HAE patients can receive proper treatment as soon as possible in the event [...]

News from Hong Kong

2019-10-11T20:56:26+02:00October 11, 2019|Hong Kong|

4 August 2019, the very first HAE patient meeting – with 44 patients participating –took place in Hong Kong. The meeting led to the founding of HAE Hong Kong and thus the addition of member number 76 to the HAE International family. HAE Hong Kong already has a Facebook group – you can find it at www.facebook.com/haehongkong. More good news [...]

Hong Kong

2021-09-29T09:58:55+02:00August 14, 2019|

HAE HONG KONG 香港遺傳性血管性水腫病人組織 Hong Kong  ·  East & Southeast Asia On this page we have pulled together presently available information relevant for HAE patients and caregivers in Hong Kong. HAE online in Hong Kong Visit [...]

News from Hong Kong

2019-07-16T14:46:09+02:00July 16, 2019|Hong Kong|

From Chief Regional Patient Advocate Fiona Wardman: Now that the date and venue for the first patient meeting in Hong Kong have been finalized, HAE International is very excited to meet with patients, carers, doctors, industry partners and the Hong Kong Alliance of Rare Disease for this special meeting in August.

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