Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]
This input is dated May 2021 >> View content in 廣東話 In brief Name for organization: The Hong Kong HAE Patient Group Limited 40 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Fun/interesting facts Foodie central Scenic hikes A city in China with its own Olympic [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
In July, HAE HK introduced a bilingual emergency card tailored for Hong Kong residents’ different language needs. With the introduction of this emergency card, Hong Kong medical staff is now in a better position to understand this rare illness so that HAE patients can receive proper treatment as soon as possible in the event [...]
From Sandy Chan, HAE HK HAE HK’s main focus in 2020 is to raise public awareness about HAE in Hong Kong, and January 2020 has proven to be a big month for HAE in Hong Kong. In January 2020, Radio Television Hong Kong (RTHK), a popular Hong Kong TV and radio public broadcaster, released two [...]
From Sandy Chan, HAE HK: HAE HK was formed in August 2019 by patients in Hong Kong with HAE and incorporated as a limited company in Hong Kong on 7 November 2019. Tax exemption will be applied. HAE HK aims to achieve optimal standards of care and treatment for all people affected by HAE living in Hong Kong so that [...]
4 August 2019, the very first HAE patient meeting – with 44 patients participating –took place in Hong Kong. The meeting led to the founding of HAE Hong Kong and thus the addition of member number 76 to the HAE International family. HAE Hong Kong already has a Facebook group – you can find it at www.facebook.com/haehongkong. More good news [...]
From Chief Regional Patient Advocate Fiona Wardman: Now that the date and venue for the first patient meeting in Hong Kong have been finalized, HAE International is very excited to meet with patients, carers, doctors, industry partners and the Hong Kong Alliance of Rare Disease for this special meeting in August.