From Regional Patient Advocate Lim Yong Hao I began my official Regional Patient Advocate (RPA) journey in June of this year, taking on the responsibility of supporting the countries and Member Organizations in the Eastern Asia region, including China, Taiwan, Hong Kong, Singapore, Malaysia, Indonesia, and Sri Lanka, from Fiona. It was a daunting [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Chief Regional Patient Advocate Fiona Wardman The last few months have been busy in the countries in the Asia Pacific region and South Africa. As the 2022 HAEi Global Leadership Workshop invitations have been sent out to the Member Organizations, there has been a lot of interest, and registrations have been completed. I’m [...]
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
Happy birthday to HAE Hong Kong! Congratulations to the team at HAE Hong Kong for their 2nd year of dedication to improving the quality of life for patients in Hong Kong. During the last few months, I have participated in meetings with various pharmaceutical companies to move forward access to modern therapies in the [...]
This input is dated May 2021 >> View content in 廣東話 In brief Name for organization: The Hong Kong HAE Patient Group Limited 40 members at 1 Jan 2021 Name of approved HAE treatments: Danazol Fun/interesting facts Foodie central Scenic hikes A city in China with its own Olympic [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
In July, HAE HK introduced a bilingual emergency card tailored for Hong Kong residents’ different language needs. With the introduction of this emergency card, Hong Kong medical staff is now in a better position to understand this rare illness so that HAE patients can receive proper treatment as soon as possible in the event [...]
From Sandy Chan, HAE HK HAE HK’s main focus in 2020 is to raise public awareness about HAE in Hong Kong, and January 2020 has proven to be a big month for HAE in Hong Kong. In January 2020, Radio Television Hong Kong (RTHK), a popular Hong Kong TV and radio public broadcaster, released two [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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HAE International (HAEi)
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