From Regional Patient Advocate Fiona Wardman The countries I look after in the Asia Pacific region have reduced due to HAEi’s newest RPA, Yong Hao Lim, taking them over. Yong Hao now looks after Eastern Asia - the countries included in his region are Singapore, Indonesia, China, Taiwan, Malaysia, and Sri Lanka. You can [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From President Beverley Yamamoto, HAE Japan We have seen great improvement in the treatment environment in Japan over the last two years, and in September the third long term prophylactic treatment was approved by the PMDA. Since last reporting to Global Perspectives, we have also seen the indications for use of Icatibant expanded to [...]
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From President Beverley Yamamoto, HAE Japan The non-profit organization Discovery Consortium has been established in Japan to try and lift the diagnosis rate for HAE up to the kind of levels seen in North America and Europe. At the moment we estimate that only 20 % of all Japanese patients have been diagnosed. The [...]
From Chief Regional Patient Advocate Fiona Wardman There have been a few focused tasks and projects in the Asia Pacific region over the most recent months, including the rolling out the new member only access courses in Advocacy Academy. During this period, I have attended virtual conferences and symposiums for the region, including the [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 >> View content in 日本語 In brief Name for organization: NPO HAEJ 93 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Firazyr Fun/interesting facts Japan consists of over 6,800 islands. Japanese trains are among the world’s most punctual: their average delay [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
The past few months have been busy in the Asia Pacific region with some exciting projects going on with the member organizations. I always enjoy catching up with each of the patient leads from all the member organizations to discuss plans and how to create awareness and education opportunities and build their capacity. I [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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