From Lim Yong Hao, HAE Singapore HAE Singapore’s membership has recently broken into double digits with 11 members, consisting of patients and caregivers. We are slowly growing and hope to reach and engage the other HAE patients and their caregivers in Singapore. There are also more physicians in Singapore who are taking care of [...]
From Regional Patient Advocate Lim Yong Hao I began my official Regional Patient Advocate (RPA) journey in June of this year, taking on the responsibility of supporting the countries and Member Organizations in the Eastern Asia region, including China, Taiwan, Hong Kong, Singapore, Malaysia, Indonesia, and Sri Lanka, from Fiona. It was a daunting [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From HAE Singapore: The first patient meeting has taken place in Singapore. Patients have connected and there are plans in place to advocate as a group and get things moving here.
From Chief Regional Patient Advocate Fiona Wardman The 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, was an excellent opportunity to bring together the Member Organization leaders. I was so pleased that many of the countries in my region had a strong presence – Australia, New Zealand, Japan, Pakistan, India, South Korea, Indonesia, and [...]
From Chief Regional Patient Advocate Fiona Wardman Over the last few months, there has been an opportunity for face-to-face meetings with Member Organizations in the Asia Pacific region and South Africa. Also, there has been a lot of communication with countries in my region in the lead-up to the Global Leadership Workshop in Frankfurt, [...]
Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 In brief Name for organization: HAE Singapore 2 members at 1 Jan 2021 Name of approved HAE treatments: Berinert for acute attacks in hospital Danazol – self funded Fun/interesting facts The food – chilli crab is high on the world’s most delicious food [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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