Since the last magazine, there has been a focus on a few projects; a couple of these were the hae day :-) “Let’s Take the Next Steps” campaign and rolling out of the Regional Medical Advisory Panel project. All the member organizations within the Asia Pacific region had their history and plans for the [...]
This input is dated May 2021 >> View content in 한국어 In brief Name for organization: HAE korea 22 members at 1 Jan 2021 Name of approved HAE treatments: Firazyr Prefilled Syringe Fun/interesting facts Korea is the only divided country in the world. Korean men are required to fulfill their [...]
During the past few months, I have been working with member organizations in my region to nominate physicians for the Regional Medical Advisory Panel (RMAP) project. I am pleased with the confirmation from the nominated doctors who have accepted to be panelists. I look forward to holding the first RMAP meeting in the next [...]
HAE Korea took a meaningful first step as a non-profit, voluntary organization on 7 November 2020 after a year of activities, starting with its first meeting of friends on 9 November 2019. We elected vice-chairman and general secretary and delivered emergency medical cards for Korean patients. The meeting that took place on the 31st [...]
The past few months have been busy in the Asia Pacific region with some exciting projects going on with the member organizations. I always enjoy catching up with each of the patient leads from all the member organizations to discuss plans and how to create awareness and education opportunities and build their capacity. I [...]
The Asia Pacific region is diverse in terms of how the member organizations are structured. The region has well-established groups and some in their infancy, the others, somewhere in between. Despite the COVID-19 crisis continuing in so many countries, some good work is still being done to continue to create awareness in the region. [...]
For hae day :-) 2020, the South Korean HAE organization held its regular meeting as well as a celebration of the awareness day. The event took place at the Songseok Welfare Foundation in Seoul and was attended by 15 patients and guardians as well as eight officials from the foundation. The program began with [...]
From Regional Patient Advocate Fiona Wardman: The first of its kind patient meeting was held in Seoul, South Korea on 9 November 2019 with presentations from Korean doctors and patients, and HAE International. Following the meeting a patient group was formed. The group already has a website up and running at https://haekorea.haei.org/.
The 83rd member of the HAE International family is South Korea. The patient organization HAE Korea has just been established – and we have three HAE knowledgeable physicians and two HAE knowledgeable hospitals on the map. Have a look at https://haei.org/hae-member-countries/south-korea.