From Regional Patient Advocates Anthony J. Castaldo and Henrik Balle Boysen Over the past several months, we have seen some very positive developments in the North America and Southeast Asia regions. Each of our countries brought a strong contingent of leaders to the 2024 HAEi Global Leadership Workshop, and we were delighted with the [...]
From Regional Patient Advocates Anthony J. Castaldo and Henrik Balle Boysen As many other Regional Patient Advocates mention, a focus of our activity with countries in these regions over the past months has been toward the 2024 HAEi Global Leadership Workshop. We’re delighted to see leaders from our organizations in North America and South [...]
From Regional Patient Advocates Anthony J. Castaldo and Henrik Balle Boysen We are very excited to report on great progress in the Southeast Asia region. Late last year, we held meetings with both the patient organization and physicians in Thailand. The 2023 HAEi Regional Conference APAC, which took place in Bangkok in March 2023, [...]
From HAE Thailand For hae day :-) 2023, Siriraj Urticaria and Angioedema Center organized and disseminated a poster and video on the topic “Hereditary angioedema (HAE) knowledge for physicians”. These informative materials aimed to educate physicians about essential aspects of HAE, including its signs and symptoms, diagnostic investigations, and treatment. The distribution of these [...]
From Chief Regional Patient Advocate Fiona Wardman The 2023 HAEi Regional Conference APAC in Bangkok, Thailand, was a success bringing together over 250 HAE patients, family members, physicians, and pharmaceutical companies to learn more about each other and HAE, to talk about advocacy, the importance of working together and the needs for the region. [...]
From National contact Suchitta Kengtanyagarn, HAE Thailand: We had our first virtual meeting on hae day :-) 2021. For the meeting, we had financing support by Takeda Thailand and the volunteer speakers were Dr. Gun and Dr. Chamas as well as the President of Hemophilia Thailand to share their experience about making a patient [...]
Known for its tropical beaches, opulent royal palaces, ancient ruins, and ornate temples displaying Buddha figures, Thailand is a wonderful country to visit in Southeast Asia. Thailand is also the home of HAE Thailand, a young organization that is working closely with HAEi as it rapidly expands its membership and advocacy efforts. Suchitta Kengtanyagarn [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
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Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
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8700 Horsens
Denmark
gro.ieah@ofni
