Europe

11th C1-INH Deficiency & Angioedema Workshop

2019-07-09T13:31:52+02:00July 8, 2019|Hungary|

Over four days in the last part of May 2019, an international scientific conference on C1-INH deficiency was held for the 11th time in Budapest, Hungary. This year, another word was added to the title of the event, now reading “11th C1-INH Deficiency & Angioedema Workshop”. “This designation better reflects the agenda of the [...]

News from Mediterranean

2019-07-09T13:44:39+02:00April 7, 2019|Algeria, Cyprus, France, Greece, Israel, Italy, Morocco, Portugal, Spain|

Maria Ferron, Regional Patient Advocate for Mediterranean MOROCCO 19 January 2019 AMMAO (HAE Morocco) held the first meeting as an official association with 115 attendees. Maria attended on behalf of HAEi introducing the association, projects, and activities to the Moroccan community. Presently Maria is supporting AMMAO on hosting their website under the HAEi umbrella. PORTUGAL [...]

News from Central & Eastern Europe

2019-07-09T13:45:05+02:00April 7, 2019|Belarus, Central Asia, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Slovakia, Ukraine|

Michal Rutkowski, Regional Patient Advocate for Central & Eastern Europe LITHUANIA Michal is in contact with a doctor from Vilnius who has shown interest in joining the HAE Global Registry project. The doctor sees around 10 HAE patients. RUSSIA Michal has been invited to attend the “Scientific and Practical International HAE Conference” that HAE Russia [...]

News from South Eastern Europe

2019-07-09T13:37:04+02:00April 7, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe SERBIA In February 2019 Natasa participated in the annual patient meeting of HAE Serbia delivering a presentation entitled ”The incredible power of advocacy”. The program also included addresses from two physicians about the therapeutic options for HAE and patients heard about the bureaucratic procedures regarding receiving medication. [...]

United Kingdom

2019-05-27T08:10:22+02:00February 14, 2019|

HAE UK United Kingdom  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in United Kingdom. HAE online in United Kingdom Visit us on Facebook [...]

Ukraine

2019-03-01T17:04:20+02:00February 14, 2019|

HAE UKRAINE ГРОМАДСЬКА ОРГАНІЗАЦІЯ "УКРАЇНСЬКА АСОЦІАЦІЯ ПАЦІЄНТІВ НА СПАДКОВИЙ АНГІОНЕВРОТИЧНИЙ НАБРЯК" Ukraine  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Ukraine. News and events The latest news from [...]

Switzerland

2019-03-01T16:55:53+02:00February 14, 2019|

HAE SWITZERLAND HAE-Vereinigung Schweiz Switzerland ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Switzerland. HAE online in Switzerland Visit us on Facebook Visit [...]

Sweden

2019-03-01T16:54:33+02:00February 14, 2019|

HAE Scandinavia / Sweden HAE Scandinavia / Sverige Sweden  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Sweden. HAE online in Sweden Visit us on Facebook [...]

Spain

2019-06-07T08:21:54+02:00February 14, 2019|

HAE SPAIN Asociación Española de Angioedema Familiar por Deficiencia del Inhibidor de C1 (AEDAF) Spain  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Spain. HAE online in Spain [...]

Serbia

2019-03-13T09:05:50+02:00February 14, 2019|

HAE SERBIA HAE Srbija Serbia  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Serbia. HAE online in Serbia Visit us on Facebook Visit our website [...]