From HAE UK Well, what a busy few months it has been for HAE UK! As CEO, Angela Metcalfe was delighted to attend the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany, at the beginning of October, and very pleased to be joined by three other patients and Trustees of our charity, as well [...]
Israeli HAE patients have gained access to Orladeyo, so with Ruconest, Berinert, and Firazyr already on the market, there are now four modern HAE medications in the country. >> See more about HAE in Israel on the country page
Any people with HAE in Ireland who are interested in participating in a clinical trial or receiving news on new treatments, please get in touch with HAEi Regional Patient Advocate Maria Ferron at gro.ieah@norref.m.
From HAE Spain (AEDAF) HAE Spain (AEDAF) Camino Walk 2023: AEDAF is pleased to announce that it will be organizing another hae day :-) event on the Camino de Santiago: the HAE Spain (AEDAF) Camino Walk 2023, which will take place from 13 to 17 May 2023. The aim of hae day :-) on [...]
On 4 November 2022, HAE Macedonia organized a meeting for North Macedonian patients in Skopje. The meeting was attended by 18 patients and caregivers and allowed patients to see each other for the first time after the pandemic and exchange their experiences. HAE Macedonia’s Vice President, Verche Jovanovska Jankovska, addressed the patients reflecting on [...]
From President Elena Bezbozhnaya, HAE Russia Over the past six months, HAE Russia has hosted various highlights, face-to-face meetings, and online webinars, with adults and children involved from all over the country. Over the summer, we invited members living in the Moscow region to a webinar on “Long-Term Prevention and Screening of HAE Patients [...]
From Vice President Ernst Greber, HAE Switzerland Impressions from the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany: We were represented by three board members The event was excellently organized The lectures were very interesting and gave us new insights The exchange with other organizations was also very interesting 11 November 2022 we held [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]
From Regional Patient Advocate Jørn Schultz-Boysen The primary objective for the last three months was the 2022 HAEi Global Leadership Workshop in Frankfurt, Germany. September with the preparations, October with the actual workshop, and then the follow-up. The workshop itself was a very successful event – not only for HAEi but certainly also for [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
