News from Spain

2020-07-08T18:09:48+02:00July 8, 2020|Europe, Spain|

From President Sarah Smith, AEDAF Awareness day: After having to cancel its 22nd General Assembly and Annual Meeting, which was due to take place in April, and with very strict confinement measures in Spain as of mid-March due to Covid-19, AEDAF did decide to carry on with the project it had planned for hae [...]

News from Russia

2020-07-08T18:05:02+02:00July 8, 2020|Europe, Russia|

From Chairman Elena Bezbozhnaya, HAE Russia Under quarantine, providing support for patients with HAE takes on special significance. HAE Russia launched a new online project for children and held several remote meetings for members for the patients to receive medical and legal advice. Call a friend: In March, we launched a new psycho-emotional support [...]

News from UK

2020-07-08T17:56:37+02:00July 8, 2020|Europe, United Kingdom|

From Chief Executive Officer, Laura Szutowicz, HAE UK It seems no time at all since I wrote the last News from the UK, in early March 2020. It was full of the “I am Number 17” campaign, our wonderful fundraisers running marathons and 24-hour karting challenges and looking forward to the 2020 HAE Global [...]

News from Belarus

2020-07-08T17:38:15+02:00July 8, 2020|Belarus, Europe|

For hae day :-) 2020 the National Library of Belarus in Minsk was illuminated with the awareness day logo. The library is the main information and cultural center of the country as its depository collections include about 10 million items of various media. It houses the largest collection of Belarusian printed materials and the [...]

News from Switzerland

2020-07-27T10:14:19+02:00July 8, 2020|Europe, Switzerland|

From Vice President Nicole Hodler, HAE SchweizUnfortunately, also we at the Swiss HAE organization had to cancel our June meeting due to coronavirus COVID-19. We are still evaluating the possibility of proceeding with this meeting in November 2020 instead.In the Sunday newspaper from 16 February 2020, an article was published with the title “Strange Swellings” [...]

News from Croatia

2020-07-08T16:42:52+02:00July 8, 2020|Croatia, Europe|

From President Mihaela Šogoric and Željka Kardum, HAE Croatia Upon the initiative of a group of patients in Croatia, the founding assembly of patients with HAE was held in the DVD home in Semeljci on 29 February 2020. The need to establish an association was recognized for a longer period because of the problems with [...]

News from Mediterranean, North Africa and British Isles

2020-07-01T13:59:22+02:00June 29, 2020|Europe, HAEi News, Ireland, United Kingdom|

  From Regional Patient Advocate Maria Ferron Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

News from Central Eastern Europe, Benelux and Middle East

2020-07-01T13:58:57+02:00June 29, 2020|Bahrain, Belarus, Central Asia, Estonia, Europe, HAEi News, Iraq, Kazakhstan, Latvia, Middle East, Poland, Saudi Arabia, Syria, Ukraine|

  From Regional Patient Advocate Michal Rutkowski I have successfully presented the Regional Advisory Group concept and Code of Conduct to all member organizations from Central Eastern Europe and Benelux. None of them had any doubts following the idea, and all countries declared participation in the project. Also, together with Advocacy Contractor Rashad Matraji, we have [...]