Europe

News from Austria

2021-01-19T15:34:08+01:00December 28, 2020|Austria|

From President Adelheid Huemer, HAE Austria 2020 has given us a lot of new challenges, and no real face to face meetings are possible. Therefore, 27 November 2020 HAE Austria went virtual and hosted the webinar “My good life with HAE” for its members. Prof. Dr. Marcus Maurer from Charité in Berlin, Germany spoke about [...]

News from South Eastern Europe

2020-12-21T12:57:17+01:00December 21, 2020|Bulgaria, Croatia, Europe, HAEi News, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I have participated in Takeda’s External Stakeholder meeting on 13 October 2020 upon invitation from the Head of the Takeda representative office in Belgrade, Aleksandar Bjelski. I was one of two patient representatives invited to speak about living with HAE, as a caregiver, but also as a patient [...]

News from Nordics & DACH

2020-12-21T12:55:22+01:00December 21, 2020|Austria, Denmark, Europe, Finland, Germany, Greenland, HAEi News, Iceland, Norway, Sweden, Switzerland, The Faroe Islands|

From Regional Patient Advocate Jørn Schultz-Boysen Having recently started up the RPA task for DACH and Nordics, I had the pleasure to meet face to face with Lucia Schauf of HAE Germany in September. I should also have met with Adelheid Huemer and Christian Müllner of HAE Austria as well as Helene Saam of [...]

News from Mediterranean, North Africa & British Isles

2020-12-21T12:42:57+01:00December 21, 2020|Africa, Europe, HAEi News, Libya, Portugal, Spain|

From Regional Patient Advocate Maria Ferron Mauritania: Our new HAE International Poster has been sent for translation to the only contact we currently have in the country. This poster can be quite helpful to localize possible HAE patients as we are not in contact with any yet. Spain: HAE Spain (AEDAF) had their annual [...]

News from Central Eastern Europe, Benelux & Middle East

2020-12-21T12:40:00+01:00December 21, 2020|Estonia, Europe, HAEi News, Jordan, Kuwait, Middle East, United Arab Emirates|

From Regional Patient Advocate Michal Rutkowski The September-October period was intense in terms of my involvement in various activities in the regions. First of all, the main activity was the preparation of the 2020 HAEi Virtual Regional Workshop Central Eastern Europe & Benelux, which is extremely time-consuming. With the global pandemic limitations, the HAEi [...]

News from Mediterranean, North Africa & British Isles

2020-10-05T11:54:26+01:00October 5, 2020|Africa, Europe, France, HAEi News, Ireland, Libya, Morocco, Portugal, Spain, United Kingdom|

From Regional Patient Advocate Maria Ferron The ACARE Center initiative has been presented to all the countries in the region, and it has been well received. We already have ACARE Centers set up in the United Kingdom, France, Spain, and Portugal and I am expecting that more will be settled by the end of [...]

News from Nordics & DACH

2020-10-05T11:54:26+01:00October 5, 2020|Austria, Denmark, Europe, Finland, Germany, Greenland, HAEi News, Iceland, Norway, Sweden, Switzerland, The Faroe Islands|

From Regional Patient Advocate Jørn Schultz-Boysen My name is Jørn Schultz-Boysen, and I am extremely happy to be appointed as the Regional Patient Advocate for the Nordics (covering Denmark, the Faroe Islands, Finland, Greenland, Iceland, Norway, and Sweden) as well as Austria, Germany, and Switzerland (also referred to as DACH). I look very much [...]

News from South Eastern Europe

2020-10-05T11:54:25+01:00October 5, 2020|Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, North Macedonia, Serbia|

From Regional Patient Advocate Natasa Angjeleska I have had continuous communication with patient organizations, pharma and physicians in the past period. Most frequently the newly established patient organization from Croatia informed me and consulted about their plan for activities in the next couple of months, including children’s gathering and activities for the youngest members [...]