An article about HAE has been published in a media in Slovenia in which Teja Iskra from HAE Slovenia discussed her experience with HAE and professor Mitja Kosnik from the Golnik Clinic explained about the disease genetics and treatment options.
On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about positive changes and constructive mindset in a mundane environment. This year the funds raised were intended for HAE Macedonia. The team of [...]
From CEO Laura Szutowicz and Executive Officer Rachel Annals HAE UK has had a busy summer with some great events thanks to our amazing members. Huge thanks to Ann Harding, one of our Trustees, for organizing the Family Fun Day at the Railway Hotel, West Horndon. June and Peter Cole kindly came along to help, and Rachel and Laura were [...]
From President Sarah Smith In Memoriam Professor Marco Cicardi: On Sunday 15 September, AEDAF attended the “Hereditary Angioedema” Lunch Seminar of the 17th European Meeting on Complement in Human Disease, held in Madrid 14-17 September, to which Professor Marco Cicardi had been invited to speak on “New treatments for HAE”. Because of Prof. Cicardi’s unexpected death in August, the session was reorganized [...]
The HAE International world map has been updated with four HAE knowledgeable hospitals in the Czech Republic – have a look at https://haei.org/hae-membercountries/czech-republic.