From Natalia Formaniuk, HAE Ukraine This year, we started preparing for HAE Awareness Month in advance and actively participated in the #active4HAE activity challenge on the haeday.org website. This initiative helps to spread the word about hereditary angioedema and attracts people from all over the world. Starting in March, thanks to the participation of [...]
From Rachel Annals, HAE UK We have had an extremely busy few months at HAE UK, with lots of projects in the pipeline and liaison with new patients. We are excited to announce our 2024 Patient Day, which will be taking place on 14th September at The Hilton, York. Registration for this event is [...]
This year, we once again held an HAE patient meeting On Saturday, 20 April 2024, from 8:45 AM to 5:00 PM at Zurich Airport, these HAE experts were available for a panel discussion to answer the questions of the participants: Prof. Dr. Med. Dr. Phil. Walter A. Wuillemin, HAE expert, Lucerne Cantonal Hospital PD [...]
From Sarah Smith, HAE Spain, AEDAF hae day :-) 2024 AEDAF took part in the hae day :-) 2024 global activity campaign, #active4HAE, with their activity “Sharing my favorite place in favor of the global HAE movement”, which consisted of going to a favorite place – a street in your city or town, a [...]
From Sofija Popovic, HAE Serbia In anticipation of hae day :-) 2024, HAE Serbia organized a hike on the mountain Avala, aiming to raise awareness of hereditary angioedema. The event brought together a diverse group of participants, including patients, families, friends, doctors, and individuals who wanted to support this cause and help raise awareness. [...]
On May 11, 2024, the Interregional Public Organization “Society of Patients with Hereditary Angioedema” (IPO “OPNAO”) held a webinar for parents of children with HAE. Patients with HAE from different regions of the country attended the event. The webinar was held in a question/answer format. Healthcare professionals discussed the possibilities of diagnosing and improving [...]
3rd Congress of ITACA co-joined with the AAEE assembly On March 16, 2024, at the Visconti Palace Hotel in Milan, where the 3rd Congress is taking place at the same time as the National ITACA Italian network for Hereditary and Acquired Angioedema, President Pietro Mantovano opens the A.A.E.E. assembly. Topics discussed by A.A.E.E.: 1) [...]
From HAE Croatia Dear HAE community! We are sending you a short but very eventful report on the work of the HAE Croatia association. The year started with a lot of activities. In cooperation with the Croatian Association for Rare Diseases, we designed a meeting and training of medical experts working on disability that [...]
From Camelia C. Isaic, HAE Junior z.s. HAE Junior Educational Camp 2024, under the auspices of the Czech First Lady, highlighted the importance of siblings. As part of the fifth educational camp, our Czech HAE patient community enjoyed a weekend full of learning, exchanging patient experiences, games, sports, and creative activities for both children [...]
From Regional Patient Advocate Michal Rutkowski It is my great pleasure to share the news and achievements from the past few months of activities in the regions of Central Eastern Europe and the Middle East. Constant contact with HAEi’s Member Organizations (MO) and regular virtual meetings are an important part of the work of [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
