From Christian Müllner, HAE Austria Report from the Annual Meeting in Graz on 30 September, 2023, at Hotel Weitzer. Our chairperson, Heidi Huemer, welcomed 35 participants (patients, doctors, medical professionals, pharmaceutical representatives) to our annual meeting. In her introductory speech, she talked about the numerous tasks of our self-help group aimed at improving the [...]
From Regional Patient Advocate Jørn Schultz-Boysen Over the past months, the main focus has been the 2023 HAEi Regional Conference EMEA in Munich, Germany, 1-3 September 2023. You can read a lot more about the conference and the impact it has made amongst patients, caregivers, healthcare professionals, and representatives from the pharmaceutical companies in [...]
From Regional Patient Advocate Jørn Schultz-Boysen The Regional Medical Advisory Panel (RMAP) for my region is still being put together. Yet another country has found its RMAP, which is great – for other countries, we are waiting for a confirmation on who should join. The first round of dialogue has already been going on. [...]
From Regional Patient Advocate Jørn Schultz-Boysen We are still working on bringing together the Regional Medical Advisory Panel for the region. Some doctors are on board, and for some countries, we are waiting for a confirmation of who should join. The first round of dialogue has already been ongoing. Still, it will be great [...]
After an amazing and successful hae day :-) with lots of activities from HAE patients, caregivers, health care professionals and industry, it continues to be wonderful reading about all the countries that participated on haei.org. The information about the countries, from past to present and looking ahead towards the next ten years is both [...]
This input is dated May 2021 >> View content in Deutsch In brief Name for organization: HAE-Austria 80 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Cinryze Firazyr Ruconest Takhzyro Fun/interesting facts Austrians are enthusiastic about skiing and the mountains. Cultural enjoyment in our [...]
A lot of things have been going on in my region in March, April and May. Much is, of course, related to the hae day :-) celebration that has kept so many of us busy with all kinds of activities. It’s been amazing to see a great number of people from many countries join [...]
It has been a pleasure starting as the Regional Patient Advocate for the Nordics and Germany, Austria and Switzerland. It is fantastic to meet – mostly online – with many of the member organizations’ representatives as there are so many things to talk about. And not least for me to learn from these amazing [...]
From President Adelheid Huemer, HAE Austria 2020 has given us a lot of new challenges, and no real face to face meetings are possible. Therefore, 27 November 2020 HAE Austria went virtual and hosted the webinar “My good life with HAE” for its members. Prof. Dr. Marcus Maurer from Charité in Berlin, Germany spoke about [...]
From Regional Patient Advocate Jørn Schultz-Boysen Having recently started up the RPA task for DACH and Nordics, I had the pleasure to meet face to face with Lucia Schauf of HAE Germany in September. I should also have met with Adelheid Huemer and Christian Müllner of HAE Austria as well as Helene Saam of [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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