By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
From Regional Patient Advocate Michal Rutkowski: HAE Belarus organized the annual summit on 26 October 2019 in the Belarusian Research Center for Pediatric Oncology, Hematology and Immunology in Borovlyany, Minsk region. The meeting gathered approximately 40 participants: patients, caregivers, physicians and pharmaceuticals’ representatives from Takeda Belarus. I had the pleasure of attending the meeting and to present the ‘Achievements and Perspectives of the HAE International [...]
Two HAE care centers have been added to Belarus on the HAE International map. Scroll down and find them on https://haei.org/hae-member-countries/belarus. Furthermore, Iryna Ausianik is the new President of HAE Belarus.
From Regional Patient Advocate Michal Rutkowski: The HAE Regional Workshop organized by HAE Poland in the city of Bialystok, Poland became an international project with the attendance of patients from Belarus. Similarity of the language and mostly mutual respect and motivation shared among the patients is the key to the ultimate goal, which is the reimbursement for modern HAE [...]
The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]