News from South Eastern Europe

2021-04-05T20:09:33+02:00April 5, 2021|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Slovenia|

In the course of December 2020 and January 2021, I held online meetings with patient representatives from Montenegro, Greece, Albania and Bosnia and Herzegovina. Some of the patients wanted to hear details about the vaccines for COVID-19 because they feel insecure about the safety of people with HAE. I have re-shared the link to [...]

News from South Eastern Europe

2020-10-05T11:54:25+02:00October 5, 2020|Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, North Macedonia, Serbia|

From Regional Patient Advocate Natasa Angjeleska I have had continuous communication with patient organizations, pharma and physicians in the past period. Most frequently the newly established patient organization from Croatia informed me and consulted about their plan for activities in the next couple of months, including children’s gathering and activities for the youngest members [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

News from Southeastern Europe

2020-04-07T15:49:15+02:00April 7, 2020|Bosnia-Herzegovina, Croatia, HAEi News, North Macedonia|

From Regional Patient Advocate Natasa Angjeleska In Croatia, I have been assisting and advising the national patient group, which was officially founded on 29 February. HAE Croatia drew some media attention and appeared on several TV shows to explain HAE. They also held a session on Rare Disease Day, which was attended by physicians and [...]

2019 HAEi Regional Workshop South Eastern Europe

2020-01-03T13:42:20+02:00December 30, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]

Bosnia & Herzegovina

2021-04-12T09:37:10+02:00January 23, 2019|

HAE BOSNIA & HERZEGOVINA HAE Bosna i Hercegovina   Bosnia & Herzegovina ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Bosnia & Herzegovina HAE online in Bosnia & Herzegovina [...]

News from Bosnia and Herzegovina

2019-07-16T18:42:28+02:00December 20, 2018|Bosnia-Herzegovina|

Mr Miroslav Dragnic has agreed to be the HAEi patient representative in Bosnia and Hercegovina, adding yet another member to the steadily growing HAEi family. You can contact him via e-mail and phone +38761727477.