From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]
From Regional Patient Advocate Natasa Angjeleska In Croatia, I have been assisting and advising the national patient group, which was officially founded on 29 February. HAE Croatia drew some media attention and appeared on several TV shows to explain HAE. They also held a session on Rare Disease Day, which was attended by physicians and [...]
By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]
HAE BOSNIA & HERZEGOVINA Hereditarni Angioedem HAE Bosna i Hercegovina Bosnia & Herzegovina · Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Bosnia & Herzegovina HAE online in Bosnia & Herzegovina [...]
Mr Miroslav Dragnic has agreed to be the HAEi patient representative in Bosnia and Hercegovina, adding yet another member to the steadily growing HAEi family. You can contact him via e-mail email@example.com and phone +38761727477.