Bosnia-Herzegovina

News from South Eastern Europe

2023-11-10T12:39:01+01:00November 10, 2023|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]

News from South Eastern Europe

2023-06-16T09:44:35+02:00June 19, 2023|Albania, Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, Kosovo, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska Most of the focus at the beginning of the year was on the announcement of the 2023 HAEi Regional Conference EMEA and applications for travel grants for interested participants. We have a relatively large group of participants from South Eastern Europe that have applied for and received travel [...]

News from South Eastern Europe

2022-12-27T13:47:57+01:00December 27, 2022|Albania, Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]

News from Bosnia and Herzegovina

2022-11-25T11:39:15+01:00November 25, 2022|Bosnia-Herzegovina|

The first center for rare diseases will be established at a hospital in Tuzla. The center will register patients according to their diagnosis and present this information to the Federal Government health authorities, thus giving a base for establishing treatment protocols. >> See more on the country page for Bosina and Herzegovina

News from South Eastern Europe

2022-10-31T14:00:06+01:00October 31, 2022|Albania, Bosnia-Herzegovina, Europe, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia|

From Regional Patient Advocate Natasa Angjeleska In the past couple of months, communication with patient representatives and physicians regarding the Global Leadership Workshop has been going on with high intensity.  The support to the patient and physician in Kosovo has continued. HAEi issued a support letter for access to treatment that was sent to [...]

News from South Eastern Europe

2022-07-06T15:47:31+02:00July 6, 2022|Albania, Bosnia-Herzegovina, Croatia, Cyprus, Europe, Greece, HAEi News, Kosovo, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I have had intense communication with the Member Organizations making sure that they were aware of the HAEi newsletter announcing the Global Leadership Workshop in October 2022. In addition, I had continued contact with some of them about the need for translation at the workshop. I’m happy that [...]

News from South Eastern Europe

2022-04-04T10:17:43+02:00April 4, 2022|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Turkey|

From Regional Patient Advocate Natasa Angjeleska The first preventive treatment started for one boy in North Macedonia, suffering from HAE attacks every four to five days. Thus far, the young patient responds to the new treatment very well, with no breakthrough attacks. HAE Turkey has held a very successful meeting in Denizli with physicians [...]

News from South Eastern Europe

2021-12-30T11:02:03+01:00December 30, 2021|Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]

10 year achievements – Bosnia and Herzegovina

2021-10-11T13:28:58+02:00July 9, 2021|10 year achievements, Bosnia-Herzegovina, Europe, Regions|

This input is dated May 2021 >> View content in bosanski In brief Name for organization: HAE Bosnia and Herzegovinia 5 (+ 7 considering) members at 1 Jan 2021 Name of approved HAE treatments: None Fun/interesting facts Complicated bureaucratic apparatus Dysfunctional health system Uncertainty What [...]

News from South Eastern Europe

2021-07-05T14:49:26+02:00July 5, 2021|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, HAEi News, North Macedonia, Romania, Serbia, Slovenia, Turkey|

On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]

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