Bulgaria

News from South Eastern Europe

2024-05-19T08:58:19+02:00May 19, 2024|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I am happy to share that almost all Member Organizations (MO) in the South Eastern Europe (SEE) region expressed their interest in participating in the 2024 HAEi Global Leadership Workshop in Copenhagen this year and applied for travel grants. We are all excited about the opportunity to meet [...]

News from South Eastern Europe

2023-11-10T12:39:01+01:00November 10, 2023|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]

News from South Eastern Europe

2021-12-30T11:02:03+01:00December 30, 2021|Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]

10 year achievements – Bulgaria

2021-10-11T13:28:58+02:00July 9, 2021|10 year achievements, Bulgaria, Europe, Regions|

This input is dated May 2021 >> View content in Български In brief Name for organization: Hereditary angioedema association Bulgaria: HAE Bulgaria 55 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Ruconest Firazyr Fun/interesting facts Beautiful nature – sea and mountains Ancient 14th century [...]

News from South Eastern Europe

2021-07-05T14:49:26+02:00July 5, 2021|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, HAEi News, North Macedonia, Romania, Serbia, Slovenia, Turkey|

On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]

News from Bulgaria

2021-05-10T08:12:16+02:00April 6, 2021|Bulgaria, Europe|

From Chairman Danail Dimov, HAE Bulgaria The next important goal HAE Bulgaria wants to achieve is to improve the access of HAE patients to plasma protein therapies and in particular to HAE prophylaxis. Our goal is to collaborate more closely with patients’ community, Bulgarian authorities and health care professionals in order to improve the [...]

News from South Eastern Europe

2020-12-21T12:57:17+01:00December 21, 2020|Bulgaria, Croatia, Europe, HAEi News, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I have participated in Takeda’s External Stakeholder meeting on 13 October 2020 upon invitation from the Head of the Takeda representative office in Belgrade, Aleksandar Bjelski. I was one of two patient representatives invited to speak about living with HAE, as a caregiver, but also as a patient [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

2019 HAEi Regional Workshop South Eastern Europe

2020-01-03T13:42:20+01:00December 30, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]

Bulgaria

2023-11-27T08:52:26+01:00February 11, 2019|

HAE BULGARIA Асоциация Наследствен Ангиоедем България Bulgaria  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Bulgaria. HAE online in Bulgaria Visit us on Facebook [...]

Go to Top