News from South Eastern Europe From Regional Patient Advocate Natasa Angjeleska 2024 Highlights The South Eastern Europe (SEE) HAEi meeting: PROVIDING BETTER CARE FOR HAE FAMILIES held in Skopje, North Macedonia, 31 May – 1 June gathered representatives (patients, caregivers, and physicians) from 9 countries: Albania, Croatia, Greece, Kosovo, Montenegro, North Macedonia, Slovenia, [...]
From Regional Patient Advocate Natasa Angjeleska It is always exciting to prepare and participate in HAEi’s meetings, but the Global Leadership Workshops that bring so many people connected by HAE in one place is one of the most exhilarating events. There was a large number of interested participants (Member Organization (MO) leads, board members, [...]
From Regional Patient Advocate Natasa Angjeleska In this edition of Global Perspectives, I’m delighted to bring you a detailed report on the SEE HAE Meeting: PROVIDING BETTER CARE FOR HAE FAMILIES held in Skopje, North Macedonia, from 31 May to 1 June. It took us a couple of months to secure funding and implement [...]
From Regional Patient Advocate Natasa Angjeleska I am happy to share that almost all Member Organizations (MO) in the South Eastern Europe (SEE) region expressed their interest in participating in the 2024 HAEi Global Leadership Workshop in Copenhagen this year and applied for travel grants. We are all excited about the opportunity to meet [...]
From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]
This input is dated May 2021 >> View content in Български In brief Name for organization: Hereditary angioedema association Bulgaria: HAE Bulgaria 55 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Ruconest Firazyr Fun/interesting facts Beautiful nature – sea and mountains Ancient 14th century [...]
On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]
From Chairman Danail Dimov, HAE Bulgaria The next important goal HAE Bulgaria wants to achieve is to improve the access of HAE patients to plasma protein therapies and in particular to HAE prophylaxis. Our goal is to collaborate more closely with patients’ community, Bulgarian authorities and health care professionals in order to improve the [...]
From Regional Patient Advocate Natasa Angjeleska I have participated in Takeda’s External Stakeholder meeting on 13 October 2020 upon invitation from the Head of the Takeda representative office in Belgrade, Aleksandar Bjelski. I was one of two patient representatives invited to speak about living with HAE, as a caregiver, but also as a patient [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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