From Regional Patient Advocate Natasa Angjeleska I have had intense communication with the Member Organizations making sure that they were aware of the HAEi newsletter announcing the Global Leadership Workshop in October 2022. In addition, I had continued contact with some of them about the need for translation at the workshop. I’m happy that [...]
This input is dated May 2021 >> View content in Ελληνικά In brief Name for organization: HAE Greece (Cypriot members are under the Greek organisation) 10 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Fun/interesting facts Wonderful beaches Warm weather Nice food [...]
On 6 March 2021, I was able via Zoom to address the participants at the annual patient meeting in Croatia and congratulate them on their engagement and activities even in a COVID year. I held a meeting with the Cyprus patient group on 25 March 2021, during which I introduced the participants to the [...]
From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
