Czech Republic

News from Czech Republic

2023-11-11T10:59:25+01:00November 11, 2023|Czech Republic, Europe|

From HAE Junior HAE juniors’ families joined the fourth educational summer camp. The fourth edition of the HAE Junior’s summer camp is successfully over! Let’s take a look back at the four days we spent together with HAE children & teenagers from all corners of the Czech Republic. A variety of educational, sporting, and experiential [...]

News from Central Eastern Europe, Benelux and Middle East

2023-11-10T12:35:04+01:00November 10, 2023|Armenia, Armenia, Bahrain, Belgium, Cyprus, Czech Republic, Egypt, Estonia, Europe, Georgia, Georgia, HAEi News, Hungary, Iran, Iraq, Jordan, Kazakhstan, Kuwait, Latvia, Lebanon, Lithuania, Middle East, Oman, Poland, Qatar, Saudi Arabia, Slovakia, Syria, The Netherlands, Turkey, Ukraine, United Arab Emirates, Yemen|

From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]

News from Central Eastern Europe, Benelux and Middle East

2023-06-16T08:48:21+02:00June 19, 2023|Armenia, Armenia, Belgium, Czech Republic, Egypt, Estonia, Europe, Georgia, HAEi News, Hungary, Iran, Iraq, Jordan, Kazakhstan, Kuwait, Latvia, Lebanon, Lithuania, Middle East, Oman, Poland, Qatar, Saudi Arabia, Slovakia, The Netherlands, Ukraine, United Arab Emirates|

From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]

News from Central Eastern Europe, Benelux and Middle East

2022-12-27T13:51:20+01:00December 27, 2022|Armenia, Belarus, Belgium, Czech Republic, Egypt, Estonia, Europe, Georgia, HAEi News, Latvia, Lithuania, Middle East, Oman, Poland, Qatar, Saudi Arabia, The Netherlands, Ukraine, United Arab Emirates|

From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value.   Much [...]

Czech Republic

2022-12-14T11:07:59+01:00December 9, 2022|

HAE CZECH REPUBLIC
 / HAE JUNIOR CZECH REPUBLIC OBČANSKÉ SDRUŽENÍ NA OCHRANU PACIENTŮ S HEREDITÁRNÍM ANGIOEDÉMEM / HAE JUNIOR Z.S. Czech Republic  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Czech [...]

10 year achievements – Czech Republic

2021-10-11T13:29:34+02:00July 7, 2021|10 year achievements, Czech Republic, Europe, Regions|

This input is dated May 2021 >> View content in Český jazyk In brief Name for organization: Civic association for the protection of patients with hereditary angioedema 70 members at 1 Jan 2021 Name of approved HAE treatments: Berinert Cinryze Ruconest Firazyr Fun/interesting facts Heart of the Europe The [...]

2020 HAEi virtual regional workshop Central Eastern Europe & Benelux

2021-07-05T15:20:15+02:00July 5, 2021|Armenia, Belarus, Belgium, Central Asia, Czech Republic, Europe, Georgia, HAEi News, Hungary, Kasakhstan, Kazakhstan, Lithuania, Luxembourg, Poland, Russia, Russia, The Netherlands, Ukraine|

By Michal Rutkowski, Regional Patient Advocate for Central Eastern Europe, Benelux and Middle East It has become a tradition that each year October brings the largest annual gathering for the HAEi community in Central Eastern Europe and Benelux. Part of the tradition is that Poland hosts a yearly regional advocacy event dedicated to patients, [...]

2019 HAEi Regional Workshop Central Eastern Europe

2020-01-03T13:38:23+01:00December 30, 2019|Armenia, Belarus, Belgium, Czech Republic, Estonia, Georgia, Hungary, Kasakhstan, Lithuania, Poland, Russia, Slovakia, The Netherlands, Ukraine|

By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-07-09T13:45:32+02:00January 14, 2019|Belarus, Czech Republic, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]

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