By Michal Rutkowski, Regional Patient Advocate for Central and Eastern Europe, Gulf Region & Middle East: The penultimate weekend of October 2019 saw the largest gathering of the year of the HAE International Central Eastern Europe community. As has become the tradition, the capital city of Poland hosted for the fourth consecutive time the annual regional advocacy event, dedicated to [...]
The HAE International world map has been updated with four HAE knowledgeable hospitals in the Czech Republic – have a look at https://haei.org/hae-membercountries/czech-republic.
HAE CZECH REPUBLIC Občanské sdružení na ochranu pacientů s hereditárním angioedémem Czech Republic · Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Czech Republic. HAE online in Czech Republic [...]
The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]
From Camelia Isaic, HAE Czech Republic: Czech patients with HAE, their families, and physicians for the first time had an opportunity to participate in an educational seminar dedicated to HAE. This meeting took place as a part of the annual patients’ meeting for patients with primary immunodeficiencies and was organized by MeDitorial agency with sponsorship [...]