From Bettina Carty, HAE Ireland It has been a quick year, and my first one as the national contact in Ireland. Our group is small but growing all the time, and with the help of immunology teams letting their patients know we are here, hopefully, that number will grow. I had the pleasure of [...]
From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From Regional Patient Advocate Maria Ferron Since the beginning of 2023, we have had a new Member Organization Lead in Ireland, Bettina Carty. She is a patient herself and a caregiver – and is starting in her duties from the beginning, but she is really enthusiastic and willing to improve the situation in the [...]
Any people with HAE in Ireland who are interested in participating in a clinical trial or receiving news on new treatments, please get in touch with HAEi Regional Patient Advocate Maria Ferron at gro.ieah@norref.m.
From Regional Patient Advocate Maria Ferron The ACARE Center initiative has been presented to all the countries in the region, and it has been well received. We already have ACARE Centers set up in the United Kingdom, France, Spain, and Portugal and I am expecting that more will be settled by the end of [...]
From Regional Patient Advocate Maria Ferron Since holding a successful meeting with the North African countries in Algiers, I have introduced the HAEi Member Organization Code of Conduct to all the patient leads in all countries in my region. I also have been working with each country to nominate an Advisor for the Regional [...]
If you want to know more about HAE in Ireland please have a look here: https://haei.org/hae-member-countries/ireland/.
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
gro.ieah@ofni
HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
