From Regional Patient Advocate Maria Ferron The main focus during these last 3 months has been the organization of the 2023 HAEi Regional Conference EMEA. After hard work and the great support provided by our HAEi Conference Operations team, it was an enormous pleasure to meet up in Munich with the patients, caregivers, and [...]
From HAE Italy (A.A.E.E.) Joint assembly: The joint assembly of ITACA and A.A.E.E members took place on 15 April 2023 at the university hospital of Tor Vergata, in Rome. The physicians of ITACA’s 23 centers of excellence, the board of the patient association, HAEi’s Regional Patient Advocate Maria Ferron, the representatives of the pharmaceutical companies [...]
From A.A.E.E. (HAE Italy) Joint General Assembly and Annual Meeting: On 14 May 2022, HAE Italy (A.A.E.E.) and ITACA (Italian Network for Hereditary and Acquired Angioedema) held a General Assembly and Annual Meeting at the NH Hotel in Padua. For the first time, doctors and patients had a joint assembly that permitted them to better [...]
From Regional Patient Advocate Maria Ferron This period has been really exciting and active for several reasons. Firstly, due to changes in the pandemic situation, we are allowed to go back to more face-to-face meetings, and it is nice to see again members of our HAE community. Also, after more than two years, the [...]
From Regional Patient Advocate Maria Ferron I am happy to announce that Lanadelumab was recently approved to be used in hospitals in Portugal. Also, from Portugal, the HAE team has been working on setting up their 2022 actions plans which among others include an HAE awareness campaign (supported with an HAEi poster), creating an [...]
This input is dated May 2021 >> View content in Italiano In brief Name for organization: HAE Italy About 800 members at 1 Jan 2021 Name of approved HAE treatments: Firazyr Berinert Takhzyro Cinryze Ruconest Danazol Fun/interesting facts Spaghetti, pizza and mandolin Tourism Heritage culture [...]
Marco Castiglioni from HAE Italy gives a perspective of the first year with the HAE Global Registry: All patients affected by HAE and enrolled in the Italian voluntary association for HAE and other rare forms (A.A.e.e – Onlus) have access to their own online diary and to the global registry for HAE patients. To have [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
HAE International (HAEi)
10560 Main Street, Ste PS40
Fairfax City, VA 22030
United States of America
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HAE International (HAEi)
Vejlevej 16, 1.
8700 Horsens
Denmark
gro.ieah@ofni
