From Regional Patient Advocate Natasa Angjeleska In this edition of Global Perspectives, I’m delighted to bring you a detailed report on the SEE HAE Meeting: PROVIDING BETTER CARE FOR HAE FAMILIES held in Skopje, North Macedonia, from 31 May to 1 June. It took us a couple of months to secure funding and implement [...]
From Regional Patient Advocate Natasa Angjeleska I am happy to share that almost all Member Organizations (MO) in the South Eastern Europe (SEE) region expressed their interest in participating in the 2024 HAEi Global Leadership Workshop in Copenhagen this year and applied for travel grants. We are all excited about the opportunity to meet [...]
HAEi is delighted to have welcomed HAE Kosovo as country no. 97 to join the global HAE family. The national contact is Edison Sylejmani. >> You can read more about HAE Kosovo on the country page In our 2023 HAEi Regional Conference EMEA Scientific Track, Dr. Rushit Ismajli presented a poster describing the first identified [...]
From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
From Regional Patient Advocate Natasa Angjeleska Most of the focus at the beginning of the year was on the announcement of the 2023 HAEi Regional Conference EMEA and applications for travel grants for interested participants. We have a relatively large group of participants from South Eastern Europe that have applied for and received travel [...]
From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]
From Regional Patient Advocate Natasa Angjeleska In the past couple of months, communication with patient representatives and physicians regarding the Global Leadership Workshop has been going on with high intensity. The support to the patient and physician in Kosovo has continued. HAEi issued a support letter for access to treatment that was sent to [...]
From Regional Patient Advocate Natasa Angjeleska I have had intense communication with the Member Organizations making sure that they were aware of the HAEi newsletter announcing the Global Leadership Workshop in October 2022. In addition, I had continued contact with some of them about the need for translation at the workshop. I’m happy that [...]
From Regional Patient Advocate Natasa Angjeleska The first preventive treatment started for one boy in North Macedonia, suffering from HAE attacks every four to five days. Thus far, the young patient responds to the new treatment very well, with no breakthrough attacks. HAE Turkey has held a very successful meeting in Denizli with physicians [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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HAE International (HAEi)
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