Montenegro

News from South Eastern Europe

2024-07-10T11:10:18+02:00July 10, 2024|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska In this edition of Global Perspectives, I’m delighted to bring you a detailed report on the SEE HAE Meeting: PROVIDING BETTER CARE FOR HAE FAMILIES held in Skopje, North Macedonia, from 31 May to 1 June. It took us a couple of months to secure funding and implement [...]

News from South Eastern Europe

2024-05-19T08:58:19+02:00May 19, 2024|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I am happy to share that almost all Member Organizations (MO) in the South Eastern Europe (SEE) region expressed their interest in participating in the 2024 HAEi Global Leadership Workshop in Copenhagen this year and applied for travel grants. We are all excited about the opportunity to meet [...]

News from South Eastern Europe

2023-11-10T12:39:01+01:00November 10, 2023|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]

News from South Eastern Europe

2022-12-27T13:47:57+01:00December 27, 2022|Albania, Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia, Turkey|

From Regional Patient Advocate Natasa Angjeleska According to the representatives from countries in my region, the most important event of 2022 is definitely the HAEi Global Leadership Workshop held in Frankfurt, Germany. There was a lot of positive energy, and it was terrific to meet face to face. All the sessions were excellent, and [...]

News from South Eastern Europe

2022-10-31T14:00:06+01:00October 31, 2022|Albania, Bosnia-Herzegovina, Europe, HAEi News, Kosovo, Montenegro, North Macedonia, Serbia, Slovenia|

From Regional Patient Advocate Natasa Angjeleska In the past couple of months, communication with patient representatives and physicians regarding the Global Leadership Workshop has been going on with high intensity.  The support to the patient and physician in Kosovo has continued. HAEi issued a support letter for access to treatment that was sent to [...]

News from South Eastern Europe

2022-04-04T10:17:43+02:00April 4, 2022|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Kosovo, Montenegro, North Macedonia, Turkey|

From Regional Patient Advocate Natasa Angjeleska The first preventive treatment started for one boy in North Macedonia, suffering from HAE attacks every four to five days. Thus far, the young patient responds to the new treatment very well, with no breakthrough attacks. HAE Turkey has held a very successful meeting in Denizli with physicians [...]

News from South Eastern Europe

2021-12-30T11:02:03+01:00December 30, 2021|Bosnia-Herzegovina, Bulgaria, Croatia, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska In October, I was focused on stirring up the countries’ interest in HAEi resources. I invited patient representatives to a member organization online meeting for my region, where we had an opportunity to discuss the situation regarding access to therapies, new initiatives, challenges etc. in the past period. [...]

News from South Eastern Europe

2021-10-06T09:38:31+02:00October 6, 2021|Croatia, Europe, Greece, HAEi News, Montenegro, North Macedonia|

I have informed the patient representatives in my region about the HAE TrackR app and sent them the files for translation. So far, we have the app translated into Serbian and Turkish – and expect to have it available in Macedonian very soon.  HAE Greece has received its registration documents and is now an [...]

10 year achievements – Montenegro

2021-10-11T13:28:57+02:00July 9, 2021|10 year achievements, Europe, Montenegro, Regions|

This input is dated May 2021 >> View content in Crnogorski In brief Name for organization: HAE Montenegro 21 members at 1 Jan 2021 Name of approved HAE treatments: Firazyr Icatibant Fun/interesting facts Only 600,000 people live in Montenegro Montenegro’s trademark is wild beauty From skiing in [...]

News from South Eastern Europe

2021-04-05T20:09:33+02:00April 5, 2021|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Slovenia|

In the course of December 2020 and January 2021, I held online meetings with patient representatives from Montenegro, Greece, Albania and Bosnia and Herzegovina. Some of the patients wanted to hear details about the vaccines for COVID-19 because they feel insecure about the safety of people with HAE. I have re-shared the link to [...]

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