North Macedonia

News from South Eastern Europe

2021-04-05T20:09:33+02:00April 5, 2021|Albania, Bosnia-Herzegovina, Europe, Greece, HAEi News, Montenegro, North Macedonia, Serbia, Slovenia|

In the course of December 2020 and January 2021, I held online meetings with patient representatives from Montenegro, Greece, Albania and Bosnia and Herzegovina. Some of the patients wanted to hear details about the vaccines for COVID-19 because they feel insecure about the safety of people with HAE. I have re-shared the link to [...]

News from South Eastern Europe

2020-12-21T12:57:17+02:00December 21, 2020|Bulgaria, Croatia, Europe, HAEi News, North Macedonia, Serbia, Turkey|

From Regional Patient Advocate Natasa Angjeleska I have participated in Takeda’s External Stakeholder meeting on 13 October 2020 upon invitation from the Head of the Takeda representative office in Belgrade, Aleksandar Bjelski. I was one of two patient representatives invited to speak about living with HAE, as a caregiver, but also as a patient [...]

News from South Eastern Europe

2020-10-05T11:54:25+02:00October 5, 2020|Bosnia-Herzegovina, Croatia, Europe, Greece, HAEi News, North Macedonia, Serbia|

From Regional Patient Advocate Natasa Angjeleska I have had continuous communication with patient organizations, pharma and physicians in the past period. Most frequently the newly established patient organization from Croatia informed me and consulted about their plan for activities in the next couple of months, including children’s gathering and activities for the youngest members [...]

News from Southeastern Europe

2020-07-01T13:59:01+02:00June 29, 2020|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Europe, Greece, HAEi News, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

  From Regional Patient Advocate Natasa Angjeleska I have had communication via e-mail with the patient groups and the patient organizations in my region to explain to them the establishing, the aim and the operation of the Regional Advisory Group (RAG) in Southeastern Europe. I requested the nomination of an Advisor from each country and [...]

News from North Macedonia

2020-04-11T15:30:19+02:00April 11, 2020|North Macedonia|

From Regional Patient Advocate Natasa Angjeleska Alongside the President and the Vice President of HAE Macedonia and members from the Rare Disease Alliance, I worked on organizing a public event with famous child actors, a singing group, band, and dancers on an event for Rare Disease Day. Unfortunately, the event had to be canceled under [...]

News from Southeastern Europe

2020-04-07T15:49:15+02:00April 7, 2020|Bosnia-Herzegovina, Croatia, HAEi News, North Macedonia|

From Regional Patient Advocate Natasa Angjeleska In Croatia, I have been assisting and advising the national patient group, which was officially founded on 29 February. HAE Croatia drew some media attention and appeared on several TV shows to explain HAE. They also held a session on Rare Disease Day, which was attended by physicians and [...]

2019 HAEi Regional Workshop South Eastern Europe

2020-01-03T13:42:20+02:00December 30, 2019|Albania, Bosnia-Herzegovina, Bulgaria, Croatia, Cyprus, Greece, Kosovo, Montenegro, North Macedonia, Romania, Serbia, Slovenia, Turkey|

By Natasa Angjeleska, Regional Patient Advocate for South Eastern Europe: We successfully managed to realize the fourth regional HAE International South Eastern Europe workshop at the Marriott Hotel in Skopje, North Macedonia 27-29 September 2019. We had 85 participants representing 11 countries from the region, including one guest physician coming from Belarus that expressed interest to join us. The composition of [...]

News from North Macedonia

2019-10-12T16:15:02+02:00October 12, 2019|North Macedonia|

On 30 August 2019, an annual charity party with more than 200 attendees was organized in Skopje, North Macedonia. The party was hosted by Ms. Nora Buklevska and Mr. Petar Kajevski – two enthusiasts who strive to bring about positive changes and constructive mindset in a mundane environment. This year the funds raised were intended for HAE Macedonia. The team of [...]

News from North Macedonia

2019-07-16T16:37:49+02:00July 16, 2019|North Macedonia|

From Natasa Angjeleska, HAE Macedonia: HAE Macedonia marked hae day :-) 2019 with a puppet show based on a story written by me about the  “Rare boy and the talkative balloon”. The story explains the sorrow of a boy that gets an HAE attack while being at a birthday party. He meets a balloon that started to puff out as [...]