From Christian Müllner, HAE Austria Report from the Annual Meeting in Graz on 30 September, 2023, at Hotel Weitzer. Our chairperson, Heidi Huemer, welcomed 35 participants (patients, doctors, medical professionals, pharmaceutical representatives) to our annual meeting. In her introductory speech, she talked about the numerous tasks of our self-help group aimed at improving the [...]
HAEi is delighted to have welcomed HAE Kosovo as country no. 97 to join the global HAE family. The national contact is Edison Sylejmani. >> You can read more about HAE Kosovo on the country page In our 2023 HAEi Regional Conference EMEA Scientific Track, Dr. Rushit Ismajli presented a poster describing the first identified [...]
From Mihaela Sogoric, HAE Croatia The Association of Patients with Hereditary Angioedema HAE Croatia successfully organized the 3rd meeting of parents and children suffering from HAE with pediatricians in Tuheljske toplice. The pediatricians chose very good lecture topics and, in my personal opinion, this was the most successful meeting so far. Saturday, September 30, [...]
From Angela Metcalfe, CEO and Rachel Annals, EO, HAE UK: In the last few months, we have had lots of meetings with healthcare professionals and our pharmaceutical company representatives. We have also just returned from the HAEi Regional Conference in Munich and were delighted to have so many UK patients attending and participating in [...]
From Ernst Greber, HAE Switzerland HAE Film: ‘HAE - Simply Explained’ with added French and Italian subtitles: The Swiss HAE Association has had a film produced in which the rare disease Hereditary Angioedema (HAE) is explained in a simple manner for individuals affected by HAE and those interested in HAE. It is explained in [...]
From Maria (Marijk) Beekman-Kortekaas, President HAE the Netherlands We’re back! For years, HAE the Netherlands has not been very active. A year ago, a new board took over, and we started to rebuild the organization. A lot has changed since then. We became more active on social media and launched our Instagram account: instagram.com/hae.qenl. This [...]
From Jovana Cvetković Lazić, President, HAE Serbia Empowering HAE Advocacy: ‘Doctors in Purple’ Project Shines Light on Early Diagnosis In collaboration with esteemed medical professionals, HAE Serbia has recently unveiled the impactful ‘Doctors in Purple’ project. This initiative aims to raise awareness and enhance the understanding of hereditary angioedema (HAE) diagnosis. We extend our [...]
From HAE Junior HAE juniors’ families joined the fourth educational summer camp. The fourth edition of the HAE Junior’s summer camp is successfully over! Let’s take a look back at the four days we spent together with HAE children & teenagers from all corners of the Czech Republic. A variety of educational, sporting, and experiential [...]
From Regional Patient Advocate Natasa Angjeleska This summer was not only for taking time to rest and vacation but also for finalizing preparations and facilitating Q&A regarding the 2023 HAEi Regional Conference EMEA with Member Organization leads, individual patients/caregivers, physicians, and pharma representatives. Although I was busy sharing demands for invitation letters for some [...]
From Regional Patient Advocate Jørn Schultz-Boysen Over the past months, the main focus has been the 2023 HAEi Regional Conference EMEA in Munich, Germany, 1-3 September 2023. You can read a lot more about the conference and the impact it has made amongst patients, caregivers, healthcare professionals, and representatives from the pharmaceutical companies in [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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HAE International (HAEi)
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