From Michal Rutkowski, HAE Poland In late June/early July, HAE Poland (also known as the Swelling Beautifully Association) organized the first-ever HAE Poland Youngsters Summer Workshop. This event was part of Dominika Blacharska’s HAEi LEAP project; Dominika is an HAEi Youngsters Advisory Group member and an HAE Poland Regional Patient Advocate. The project was [...]
From Regional Patient Advocate Michal Rutkowski Hello HAEi Friends! I truly hope you had an enjoyable and relaxing summertime spent with your loved ones. I am happy to catch up with you again and to share what happened over June, July, and August. It has been a very busy time dominated by the 2023 [...]
From Regional Patient Advocate Michal Rutkowski In this report, I will focus on the Middle East, as so much has been going on there in just a few months. Indeed, the last three months have been the busiest period since I was appointed Regional Patient Advocate (RPA) for this region. At the same time, [...]
From Regional Patient Advocate Michal Rutkowski It was a privilege to see you in person again in Frankfurt, Germany, at the 2022 HAEi Global Leadership Workshop! It’s incredible how powerful and inspirational a patient gathering can be, and to see all the friends after such a long time is always additional value. Much [...]
In June, HAE Poland held an HAE Workshop in Warsaw, dedicated to patients and caregivers. It was the first in-person meeting of HAE Poland in 28 months. HAE Poland is working on another two meetings in Wroclaw and Krakow before the end of the year.
From Regional Patient Advocate Michal Rutkowski I am excited to share with you that after a long pandemic period, I had the pleasure of attending a patient meeting in person organized in Yerevan in June by HAE Armenia. It was so amazing to meet local patients, caregivers, and HAE expert physicians and to focus [...]
From Regional Patient Advocate Michal Rutkowski I am excited to announce that the HAEi global family now comprises 95 Member Organizations. One of the most recent additions is HAE Oman, represented by Maryam Al Balushi. So, HAE Oman, welcome on board! March, April, and May 2022 have been very busy with different advocacy activities. [...]
From Regional Patient Advocate Michal Rutkowski I hope you have had an enjoyable holiday season and went energized into the new year with advocacy motivation. So many things have happened since the last edition of Global Perspectives magazine, and I am happy to share it all with you. I was privileged to attend numerous [...]
From Regional Patient Advocate Michal Rutkowski Despite the difficult global pandemic situation, I hope you are keeping safe, healthy and have been already vaccinated. Firstly, happy birthday to HAE Belarus and HAE Kazakhstan, who recently celebrated the 4th and 3rd anniversaries. The organizations and patients strive to have the first modern HAE treatment reimbursed, [...]
From HAE Poland: We can proudly announce that the first preventative therapy has been approved and reimbursed in Poland. This is a great and unprecedented achievement of the entire Polish HAE community, a patient organization, and expert physicians, who, together with Takeda, for over 18 months have undertaken various activities to raise awareness of [...]
HAE International is a global non-profit network of member organizations dedicated to raising awareness of hereditary angioedema and improving the lives of people with HAE.
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