News from Central & Eastern Europe

2019-05-15T14:22:48+00:00April 7, 2019|Belarus, Central Asia, Czech Republic, HAEi News, Hungary, Kasakhstan, Poland, Russia, Slovakia, Ukraine|

From Michal Rutkowski, regional patient advocate, Central & Eastern Europe LITHUANIA Michal is in contact with a doctor from Vilnius who has shown interest in joining the HAE Global Registry project. The doctor sees around 10 HAE patients. RUSSIA Michal has been invited to attend the “Scientific and Practical International HAE Conference” that HAE Russia will [...]


2019-03-05T14:49:25+00:00February 14, 2019|Europe, Poland|

HAE POLAND Pięknie Puchnę Poland  ·  Europe On this page we have pulled together presently available information relevant for HAE patients and caregivers in Poland. HAE online in Poland Visit our website [...]

HAEi Central Eastern Europe Conference and Workshop 2018

2019-05-15T16:49:29+00:00January 14, 2019|Belarus, Czech Republic, HAEi News, Hungary, Kasakhstan, Poland, Russia, Ukraine|

The HAEi Central Eastern European region is a massive one consisting of 12 countries with a population close to 300 million people – and with only around 15 per cent of all HAE patients diagnosed. Therefore, this region requires an individual approach and hands-on assistance in activities related to advocacy, gaining access to and [...]